three rivers fog

Why We Need Universal Health Care

Consider my scenario.

The eligibility requirements for Social Security Disability, in a nutshell:

  • Have a medical condition (mental or physical), or any combination of multiple conditions, which
  • Impairs your ability to work for pay, such that
  • You cannot pull Substantial Gainful Activity, which is currently (for 2009, non-blind) defined as
  • $980/mo.

Do the math: that comes out to a yearly wage of $11,760 before taxes. That doesn’t have a whole lot of buying power, even in flyover country.

I applied for disability, and was approved, in 2005. At the time, SGA was defined as $830/mo. At the same time, I was seeking residence in Orange County, California.* The cheapest place I could find (with access to a reasonable bus route to my university) without rooming with strangers was $860. That was for a “bachelor” apartment without so much as a kitchen.

My disability payment — as a Disabled Adult Child (what an unfortunate name!), it was based on my mother’s work record — was calculated to be, if I remember correctly, $844. That was a California payment — the federal payment at the time was (iirc) $579.

So, my disability payment didn’t so much as cover rent. It didn’t help that my old buddy Gov. Schwarzenegger kept cutting the cost-of-living adjustments for the blind and disabled, in order to balance the budget shortfalls created by his tax cuts for the wealthy. Priorities, people!

Anyhow. SSDI recipients are eligible for Medicare coverage beginning their 24th month of benefits. Which is nice and all, but it meant two years of paying out-of-pocket for the drugs I needed to be well enough to leave the house for more than five minutes at a time. Expensive drugs, needless to say, which had no cheap generic alternatives.

But time passed, and as of February 2007, I became eligible for Medicare. Finally! I was able to seek full treatment for my medical condition, no longer doing the bare minimum to get by.

But as things improved, I faced a conundrum: With the treatment Medicare paid for, I found myself better able to work… enough to earn something approaching SGA… and my condition was only improving. This would have resulted in the loss of my disability benefits, which would also mean the loss of my Medicare coverage. But the private market refused to insure me. Which means I would no longer have been able to afford the treatment that allowed me to work. So my condition would have deteriorated, rendering me, again, disabled. At which point I would be eligible for Medicare… and…

A vexing situation, in my case “solved” by my loss of benefits upon marriage (a feature of the DAC program). Were it not for that — or if I fail to remain married for the rest of my life — I would be back in the same endless circle.

And I know I’m not alone.

- – - – -

*Spare me the “Well, you could have moved somewhere cheaper!” Most people can’t simply pick up and move sight-unseen. Especially the poor and disabled, who can’t exactly hop on a plane and just count on reliable residence and employment being available for them. For the most part, people who do not enjoy considerable economic privilege are geographically immobile. If they haven’t already lived there and they don’t happen to have family there, chances are it isn’t going to be a smart move for them to move there. The ability to research a new area, conduct a job search from afar, and pick up the pieces after the move (you’re going to have to find new: furniture, vehicle, auto and home insurance, health insurance, family doctor, specialists, etc. — the latter which are a huge burden [do you have any idea how hard it is for the health-challenged to find a good, communicative, knowledgeable, effective practitioner to treat their ills?]) is a privilege, and no person should be judged for lack of it.

by amandaw on Friday, October 31, 2008 at 10:39 am 1 Comment
Tags : chronic illness, class, disability, healthcare, personal, politics, privilege, stories

Observation

Recent weeks have found me working for the Community Voters Project, a nonprofit non-partisan organization from the Fund for the Public Interest. CVP works to register African American voters. (They will register anyone who approaches, but they seek out communities of color specifically.) Yeah, spare me the ACORN talk.

It was an interesting exercise in not voicing my opinion about, well, anything. Which was difficult, especially when people would persist in trying to talk politics with me. I fell back on talking about how exciting and important this election was, and how awesome it is that so many people are starting to engage with the political process, and how for whatever reason, this election has a lot of people getting up and taking action, which is a Good Thing.

I was pleasantly surprised to find that almost everyone I approached was not only registered, and not only voting (and always for Barack!), but was taking active measure get the people they knew involved, too. We visited a couple African Methodist Episcopal churches (I browsed through a book on women and global poverty at one, which was excellent), where there was naught an unregistered adult to be found. I spent a lot of time in front of the Christian Outreach and doing some door-to-door in the majority-minority parts of town. It was a genuinely exciting job to do, and incredible to see so many people inspired to take action themselves. I took a huge hit for my efforts physically, but I’ll never regret it.

I did notice, however, that while every black person I encountered supported Barack, there were still a considerable amount of them who were adamant that they were not going to vote. And there was only ever one reason they gave for that decision.

“Someone’s going to take him out.”

A lot of people expressed fear, or resigned certainty, that a President Obama would be swiftly assassinated. And you know what? I just don’t know what to say to that. It just makes me profoundly sad.

by amandaw on Thursday, October 30, 2008 at 11:18 am No Comments
Tags : personal, politics, race, stories

Hockey ‘n Heels

One day my husband is dragging me (who likes to play sports, but has no skill at playing sports, and had zero interest in pro sports whatsoever) along to a playoff game, the next thing we know I’m a rabid Penguins fan. I “accidentally” bought a six-game mini-plan last season (long story), which didn’t help matters. I got to watch Malkin step up the points race while Sid was down with a high ankle sprain. I developed a quick appreciation for Marc Andre Fleury, the deft and nimble crosseyed French-Canadian crack monkey, my one and only celebrity crush (seriously, watch that man move — the splits, the dives, the spins, the full-getup-and-skates hops — and watch his dark eyes dart around behind his face mask, always searching — and tell me that isn’t impressive as hell). I got to be a part of the incredible energy in Mellon Arena during the final games of the season. It’s a drug. And I got hooked.

I don’t know what it is about the game that draws me. It’s not for a lack of other sports in the household — hubby is a baseball stats geek, and also watches football, basketball, and NASCAR — none of which interest me much. (Surprisingly, the most tolerable of those four is the last one.) But for whatever reason, now, the sound of skates on ice, and the silly epic-sounding Penguins intro music, gets me in that same giddy mood children get in on Christmas morning.

One of the things I appreciate most about hockey is that it didn’t seem to have the exclusive atmosphere of, say, your football or basketball. There are no cheerleading squads or “dancers,” and the ads during the TV broadcasts tend to be pretty mild. No soft porn, GoDaddy, macho-man robots, local radio-sponsored hot babe contests, and the like. There is an element of performed masculinity, as in just about any mainstream pro sport. I mean, fighting is pretty much a central tenet to the game. But — and I’m having trouble articulating the distinction here — while there is definitely quite a bit of feminist analysis to be done on the game, the players, the culture, the advertising, and so on — there isn’t quite the same constant reminder to women that this isn’t for you.

It’s hard to watch football and not be bombarded with messages that are explicitly and enthusiastically geared for men. Not men as humans, but men as men. And not even men as men, in an affirmative, appreciative way — but men as not-women, in a taunting, exclusionary way. It is telegraphed quite clearly that women’s only place in the game is for men’s consumption.

I never much got that sense in hockey — or NASCAR, surprisingly, as I said. The culture was definitely geared toward men, but it didn’t shut the door on women. And I appreciated that. “Honorary man” still isn’t good enough, but it’s a hell of a lot better than “man’s property.”

In football, women are a part of the game as bikini-clad cheerleaders. In racing, women are part of the game as on-the-ground reporters. And while the latter sport is hardly innocent (trust me, I’ve hardly a lack of criticism for the sport), that difference does send a message to the fans at home.

All of this is a lengthy introduction to my home team’s latest marketing project: Hockey ‘n Heels.

I mean, the program itself doesn’t sound so bad, right?

  • One (1) game ticket in the Club Level Seating for three (3) games which includes event ticket, event premium item and buffet dinner
  • Locker Room Tour
  • On-Ice Demonstrations with the opportunity to sit in the Penalty Box/Player Bench
  • Attend a morning skate
  • Meet and greet with players after the morning skate
  • Limited Edition Framed Art Piece

Sounds pretty cool. And really, I don’t see how this would appeal any differently to women than to men, or children, or hockey-lovin’ aliens from outer space. At least it isn’t a hot stone massage and black-and-gold manis and pedis. It’s cool, exciting, relevant stuff. Actually hockey-related. Nothing any female hockey fan wouldn’t love.

Why, then, the stupidass name?

I don’t know about anyone else, but I’ve never seen anyone standing in line to get in to Mellon Arena wearing four-inch Manolos. Pretty much everybody comes wearing some sort of Penguins jersey, shirt, jacket or sweater, possible a Penguins baseball cap or beanie. Most people are in jeans or shorts. The women who wear Pens gear tend to wear oversized men’s sizes. They look frumpy. They look “ghetto.” And they don’t give a shit! They’re showing team spirit, dammit.

I have seen a couple men in business suits, but I haven’t seen a single pencil skirt yet. And I’d say it’s somewhat impractical to mount the steep steps up to your seat inside the arena if you’re wearing shoes that double as an assault weapon.

OK, there’s nothing wrong with heels. I understand a lot of women love them. I love my skirts. I wear makeup (sometimes). I like getting all dressed up. I’m pretty cool with flowers and I like to bake. Hell, I actually like doing the laundry! All of which are trappings of femininity, some of those things perfectly harmless were they not bound to gender roles. And I don’t think it’s really feasible for most women to completely eschew anything that could possibly be “tainted” by the patriarchy. So this isn’t a criticism of heels themselves.

It’s just out of place, is all. I see a hell of a lot of women in those stands. Most of them are jumping and screaming and enjoying a beer just as much as the men.

But they needed a clever name that would capture female fans. Thus, heels.

When I see or hear an advertisement for this program, it just reminds me that I’m not a “real” fan. I’m not “supposed” to be making a damn fool of myself, shouting criticism from the sidelines, quoting stats in conversation with my husband, biting my lip when the game gets particularly tense, and jumping to my feet every time the horn sounds for a goal. That’s what men do. Women sit pretty, toss their hair, and giggle politely when men do something stupid. They’re not supposed to enjoy the game, because women don’t like sports for sports’ sake. They just get dragged along by their husbands. The only way to get them interested is to appeal to the girly things they actually like to do. Don’t cha know.

Ugh. I don’t know what else to say. I’m disappointed. If I had money to throw around, maybe I’d offer them a considerable sum just to change the fucking name. It’s patronizing. Shame.

by amandaw on Wednesday, October 29, 2008 at 3:58 pm 1 Comment
Tags : advertising, defaulting, feminism, fuck that, head asplode, home, penguins, personal, pittsburgh, problematic attitudes, rants, sexification, sports

“Values”

I hear it in just about every political commercial now. What does it mean?

“He shares our values…”

“Family values”

“American values”

“Traditional values”

If nothing else, this election season makes one thing quite clear: in a sociopolitical context, the word “values” is nothing more than a code word for “white.”

by amandaw on Monday, October 27, 2008 at 10:14 pm No Comments
Tags : advertising, brain fog, defaulting, fuck that, politics, privilege, race, rants

On Onions

The fancy-schmancy cook books tell you to soak your onions in cold water, as this will reduce the icky aftertaste and bad breath associated with the stinky bulbs. What they don’t tell you is that when your husband places the plastic-wrapped plastic bowl of swimming onions in the refrigerator so that he can use the already-soaked onions on his next sandwich, salad or other consumable, that same lingering bitter essence which is removed from the onions will be imparted upon every other item in your refrigerator. And on the refrigerator itself, for that matter.

Purified water? Iced tea? Crisp fujis? Low-fat yogurt? Soda cans? No innocence is left unspoiled. Beware the cold-soaked onion, my friends.

by amandaw on Monday, October 20, 2008 at 11:36 am No Comments
Tags : personal, silly

Falling

My writing has fallen to the side as we go through something of a personal crisis. I hate declaring hiatus; closing off a door, any door, leaves me feeling cramped and constrained. But, yes, things are in a bit of upheaval at current time, and my participation in this amazing community will be limited for a time.


my body, and everything i use to take care of it.

Tomorrow is Love Your Body Day. The boundaries defining NOW, the sponsoring organization, are widely known to be drawn (conveniently) around the Western ideal of the financially privileged white life. But, much like feminism as a whole, I feel there is something of value at the core, something of use to all of us.

I find little use in campaigns and projects claiming to sprout from a respect and appreciation of the human body, which decry an unfair media ideal, but whose aim seems to be — not to deconstruct that ideal in an attempt to destroy any ideal whatsoever — but to deconstruct that ideal so as to replace it with one more conveniently molded to their own experience.

I do not want to replace the size zero ideal with a size six ideal. I do not want to look at the impossibly tiny waists and replace them with well-defined waists always significantly thinner than their accompanying hips and bosom. I don’t want to look at the airbrushed, overtanned, bleached blonde ideal and replace it with an ideal that includes pores and a range of hair color, but only on caucasian and white-skinned bodies, which are still skinny and perfectly toned, with smooth caucasian hair that’s allowed to be stick straight to a little wavy, and always the bright open eyes and blinding smile, always a smile.

Instead of an ideal, instead of merely shifted expectations — we need to blow that ideal to pieces, and in its place, put a purposeful lack of expectation, put a willingness to consider, put a confident knowledge that one may be faced with anything, anything, and put a curiosity, a sense of wonder, an ability to find beauty, rather than have it delivered.

Bodies, bodies, bodies. When we tell one person her body is beautiful because it is not this, or that, or that other thing, we tell another person whose body is one of those things that her body is not beautiful. When we tell one person her body is what we should be celebrating, we tell every other person whose body is different that they are still deficient — only in a different way.

(And as an aside: when we tell one person that real beauty is natural beauty, no modifications, no adaptations, no change whatsoever — we tell every other person on earth, every person who ever does any single thing to change their body, how it looks, what it does, how it feels — we tell them that they are not only deficient — they are committing a grave moral sin. Do you use mascara? Have you ever cut your hair? Why do you eat what you eat? Have you ever taken any sort of medication, for anything from a cold to cancer? Ever visited a doctor, therapist, or other practicioner? Ever injured yourself, and applied an antibiotic and bandage, or a set and cast, to make your body do something it would otherwise not do on its own? Do you wear glasses or contact lenses? Do you wear shoes? Do you shave? Well then.)

Instead, we should tell each person: you are a full, whole, valuable person. Look into yourself. Curl up deep within yourself, forsaking the outside world. And look around. What do you like? What feels good? What does good? What is it about your physical self that makes your life a little bit better?

Maybe it is how your body looks. Maybe it is what your body does. Maybe it is how your body feels. Maybe it is not any of these things. Maybe it is something else.

Look at your body, look at it, every day, look at it and think to yourself, and seek out that which is good. Good. Not good for them. Good for you.

What do you delight in?

What will you?

Body image is a question not only for just-under-average-sized upper class white girls and women. Body issue is a question for all of us. Women and men alike. People of color, mixed races, different cultures with different values. The fully abled, the disabled, the deformed, the deficient. Every one of us, as human beings, has to deal with the reality of our bodies as they are and how that conflicts with the expectations the rest of our society has of us. This is expressed in different ways for different persons and different society. But not one of us, not one, is unaffected.

So I invited everyone, even those who know they are not NOW’s target demographic — I invite you all to participate tomorrow. Seek peace with your body. After all, you can never escape it. But your body is not your adversary. Your body is you.

Love yourself.

by amandaw on Tuesday, October 14, 2008 at 3:12 pm Comments Off
Tags : advertising, body image, class, defaulting, disability, fat, feminism, justice, metablogging, personal, photos, problematic attitudes, race, sexification, the media

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amandaw is a proud woman with a disability who doesn't have nearly enough time to deal with all this shit. Her space is dedicated to the examination of feminism, politics, the social model of disability, and the antics of her beloved cats. Things won't always make the most sense, so hang in there with me—but at least we'll have some pretty pictures to make up for it, ya?

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