three rivers fog

Gender, health, and societal obligation

Kate Harding, writing at Broadsheet:

“If you ask us,” say Glamour editor Cindi Leive and Arianna Huffington, “the next feminist issue is sleep.” Personally, I never would have thought to ask those two what the next feminist issue is, but they make a pretty good case. “Americans are increasingly sleep-deprived, and the sleepiest people are, you guessed it, women. Single working women and working moms with young kids are especially drowsy: They tend to clock in an hour and a half shy of the roughly 7.5-hour minimum the human body needs to function happily and healthfully.” The negative effects of chronic sleep deprivation are well-documented, but that doesn’t inspire enough people to prioritize rest, and women often end up in a vicious cycle of sacrificing sleep in order to do extra work and make sure their domestic duties are fulfilled, causing all of the above to suffer. “Work decisions, relationship challenges, any life situation that requires you to know your own mind — they all require the judgment, problem-solving and creativity that only a rested brain is capable of and are all handled best when you bring to them the creativity and judgment that are enhanced by sleep.”

So many obligations are heaped on the shoulders of women, and it is pretty much impossible to fulfill all of them even if you completely neglect your own needs. Of course, trying to tend to your own needs means even fewer of those obligations fulfilled, and there are cries and admonishment of selfishness and failure and responsibility to others waiting for you should you assert your right to self-care, because by asserting the right to take time and energy exclusively for yourself, you are stealing time and energy that belongs to others.

Sleep is a contested act in American society (perhaps in others too, but I can only speak to the US): getting little of it becomes a point of pride; getting a lot of it is a symbol of laziness, selfishness, sloth, dirtiness, carelessness. People are expected to perform amazing tasks on as little sleep as possible, which is completely counterintuitive, because most people are going to perform worse with insufficient sleep — consider it a generalized manifestation of the supercrip phenomenon: exactly the people who are least supported/enabled to do something are the ones who are expected to do it better than normal people.

Better sleep would surely benefit many of us, but why?

According to Leive and Huffington, the main benefits realized are in service of others; the main beneficiaries are the people around you. Or, if you see the benefits, they are benefits that stem from an obligation to others, any self-benefit remaining firmly subordinate to the “greater good” of one’s family, colleagues and community members.

We should be well familiar with the concept of women as public property. Women’s bodies, women’s time, women’s possessions, women’s decisionmaking capacity, women’s self-determination — just about anything a woman possesses, though she doesn’t really possess. Rather, she is allowed use of something that is under her care but not her ownership: it belongs instead to the people around her.

Feminists are familiar with the idea that our society considers female reproductive organs to be public property. A woman’s vagina should be available for all comers (men), and simultaneously be unavailable so as not to waste its value to its eventual sole owner (a man). A woman’s uterus is to be used for the good of the human species/civilized society: the right kind of women are to reproduce as much as possible, so that their kind remain the dominant group in both pure numbers and in overall power. (On the other hand, the other kinds of women are called upon to perform the rough, menial work necessary to uphold modern society, while not polluting the human species by reproducing themselves.)

But honestly, public ownership of women extends so much further than their reproductive systems.

No woman is allowed to assume ownership of any part her physical self, her time or purpose: it is still an “indulgence” for a woman to eat anything more substantial than a leaf of lettuce, still “sinful” to enjoy less than 100 calories of overprocessed puddings and crackers. It is still somehow selfish to take a long bath or to sit and rest for an hour’s time, still slothful to refrain from moving, working, pushing, rushing every single moment of every day.

Women’s work, in general, is under-valued and un(der)paid — and it is uncompensated precisely because women’s time, their energy, their effort, do not actually belong to the women themselves, but rather to the rest of the world. It is theirs to use whenever, however, and however much they wish, and isn’t it ridiculous to suggest they should pay for the use of something that belongs to them in the first place?

This is all part and parcel of living in a patriarchy, a predictable result when society relies upon a person’s gender to determine hir position in society, the things sie will do, the roles sie will play, the direction hir life will take. But gender is not the only variant in play here. In fact, I believe that gender is actually secondary here to another factor — it is merely one avenue of manifestation for our cultural construction of health.

Surely you have heard of the theory that gender is not an inherent trait, but a performance. This theory is definitely not without flaws, but I bring it up in hopes that it provides a familiar framework for a discussion on the social construction of health.

Health, you see, is not merely an inherent trait. Health, instead, emcompasses a variety of factors, including a person’s intrinsic qualities but also the environment in which they operate and their everyday behaviors.

Health is not just what a person is. Health is also what a person does. And what drives a person to do something is not wholly internal, but rather is largely influenced by external factors.

Gender, for instance, is both an internal sense of being and something we do for other people, something we do because we want other people to think about us, react to us, in certain ways. And the things we do, and the expected reactions to them, are different depending on which culture we are operating in — dependent on where we live, on our ethnicity, on our class background, on any number of other things. What it means to wear certain types of clothing is different in different cultures. What it means to speak a certain way is different in different cultures. And so on.

This framework is — I hope — useful for understanding what health actually is.

The form “health” takes is different depending on the expectations of the culture you live in.

The ultimate importance of that so-defined “health” is different depending on the expectations of the culture you live in.

The role “health” plays in the culture, what “health” means in that culture, the way the people of that culture interact or engage with that idea of “health,” are different depending on the expectations of the culture you live in.

What you do to achieve “health” is different depending on the expectations of the culture you live in.

How your health affects your position in life, your economic opportunities, the support that is offered for you to live the kind of life you desire, are all different depending on the expectations of the culture you live in.

(And yes, all of this is just as true in a culture that makes use of the scientific method and sees itself as cool and rational. What is investigated, and how, and how the results are interpreted, and what lessons are drawn from those results, and how those lessons are applied in everyday life — all these things must grow out of the culture they happen in! )

Health, then, is not merely a personal state, but rather a cultural fulfillment. Health (of whatever kind) is expected of you, expected by the people around you. Your health is not your own, but instead belongs to your family, your community and your wider culture. You must achieve and maintain (whatever kind of) health, not because it benefits you personally, but because you will have deeply failed your fellow members of society if you don’t.

And this is what underlies the problematic aspect of Leive and Huffington’s statements. They are not suggesting that the sleep deficit for women is a problem because the woman herself feels fatigue or cognitive dysfunction. They are suggesting that the sleep deficit for women is a problem because the woman cannot fulfill the expectations of health — and the performance of duties that rely on that state of health — that society has for her. They are suggesting that the sleep deficit for women is a problem because then that woman personally fails her family, community and country.

Here, then, her lack of sleep lays bare her duty to society based on particular qualities she holds. But the disparity between her duty and her male peer’s duty would not exist if all of us did not have a duty to society to achieve and maintain a certain kind of health.

And Leive and Huffington, purporting to be advocating on women’s behalf, do nothing but reinforce the same system that screws women disproportionately when they center a woman’s obligations to the people around her over the personal experience of the woman herself.

And here, I hope, feminists will understand what disability activists mean when we talk about the supposed obligation of mentally ill people to submit to (certain kinds of) treatment for the sake of the rest of society — or what fat acceptance activists mean when we talk about the supposed obligation of all people to be as thin as possible for the sake of the rest of society — and so on.

Eating “healthy” (as determined by mainstream cultural wisdom, largely controlled by wealthy white temporarily-abled folk) is not done solely for oneself. Neither is “exercise” (of course, what counts as physical-activity-that-improves-health is controlled by the same people who control what counts as food-that-improves-health). Participation in the paid workforce is not done solely for oneself — we are, in part, fulfilling the obligation of “responsibility” (which is a component of the health performance, because when health is lacking, the ability to work declines — so work, then, is a demonstration that you are fulfilling your health obligation).

When a person neglects to fill a health-related obligation, there is someone there to remind them of the cost to the rest of society. We’ve all heard figures on the cost of obesity, the cost of heart problems, the cost of low employment rates, the cost of suboptimal nutrition, the cost of insufficient sexual education, the cost of lost sleep… wait, that sounds familiar. Anyway, the cost might be in dollar figures, might be in time lost, might be in persons participating in x activity, or might be more intangible: work decisions, relationship challenges, judgment, problem-solving, creativity… wait a second, didn’t we just hear that? Oh yeah.

And that’s what’s wrong with this angle. Ladies, you are hurting your families! You are failing your communities! You’re dragging all of society down with you! When all you have to do is get an extra hour of sleep — seriously, how selfish are you, staying up to get the dishes clean after your kids have gone to bed so that they’ll have clean bowls to eat cereal out of in the morning?

Except that the entire reason women are getting less sleep than they need is because they’re busy fulfilling their obligations to the rest of the world. The entire reason women are getting less sleep than they need is because they’re required to be well enough to handle multiple shifts, every single day, for their entire adult lives. The entire reason women are getting less sleep than they need is because they’re required to get up at stupid o’clock every morning to handle all the things they’re required to do before going to work (including the obligations to project an image of “health” — to look and smell fresh and clean, to be sufficiently hair-free, to wear attractive clothing, to possibly spend time putting on a face full of makeup and making her hair look presentable — all which are wrapped up in appearing healthy to the people around you), and when they get home from work they still have to do the laundry and make the dinner and wash the dishes and pick up the floor and wipe down the kitchen and bathroom counters and possibly wrangle kids or partners all the while –

– and then they are getting chided by self-proclaimed women’s advocates because they spend too much time doing things for other people, and not enough time doing things for oneself… for… other people…

And it’s impossible to separate the demands of womanhood from the demands of ability. It’s difficult to differentiate the hierarchy of value imposed on people of different genders from the hierarchy of value imposed on people of differing abilities.

I’m sure you get, by now, how women get completely and utterly screwed in this situation. But I invite you to imagine, then, how disabled people get completely and utterly screwed by this situation — and then I invite you to imagine how a system that did not value people differently due to their differing abilities would also remove a lot of the pressure that is currently dumped on women.

A system of equal access, opportunity, value, for people of all types of abilities, would be radically better for people currently oppressed under this gender-based system.

And when you reinforce the ability-based system of oppression, you make things worse for the women living under it.

… just sayin’.

(Cross-posted at FWD/Forward.)

http://www.salon.com/mwt/broadsheet/feature/2010/01/04/sleep_challenge/index.html
by amandaw on Thursday, February 4, 2010 at 8:00 pm 1 Comment
Tags : body image, chronic illness, community, control, culture, disability, family, feminism, health, privilege, social construction

Lumpectomy

A year and a half ago, my gynecologist discovered two distinct lumps in my left breast during my annual examination. The ultrasound found six more — totaling seven lumps in the left, one in the right.

They are fibroadenomas, which are benign lumps formed by a combination of glandular and fibrous tissue in the breast. There is some evidence they are either formed or fed by estrogen in the body — much like the endometrial implants in my pelvis. I guess I’m just too woman-y for my own good. Anybody need some spare estrogen?

The largest one, at one o’clock on the left, was 2.2cm at my last ultrasound (I am supposed to return every six months, indefinitely, to monitor their size/location to make sure nothing suspicious is going on). It is now 3.2cm, and causing enough pain that it is difficult to lie with any pressure on the breasts (on my stomach or too far to my side) or wear my normal bras.

So it’s coming out. On Wednesday.

I’m nervous. To say the least. Partly for pure vanity. There are very few areas of the body that I unequivocally like. This is one of them. More than likely, the most I’ll end up with is another scar (got plenty of those, don’t particularly care) and possibly a small dent.

I’m both moderately anxious and morbidly curious as to how this is going to turn out.

by amandaw on Sunday, August 16, 2009 at 7:36 pm 6 Comments
Tags : body image, healthcare, personal, reproductive, treatment

Friday Catblogging and This Moment’s Roundup

0724091440a

Today’s roundup brought to you by oh look a feather toy!

MORE

by amandaw on at 4:34 pm 1 Comment
Tags : accessibility, advertising, assholes, beauty, body image, catblogging, control, culture, defaulting, disability, diversity, feminism, fuck that, healthcare, justice, mental illness, normal is only one option, photos, politics, privilege, problematic attitudes, roles, scams, the left, the media, this all sounds awfully familiar, treatment, video

Disability Is…?

Apologies for RSS readers; I forgot to cross-post this when posted at Feministe! Getting it posted so I can move on to new posts.

***

We had a really good discussion about nondisability. It got derailed, a bit, because it depended on our ability to reasonably define disability. And it’s a subject that has come up in every discussion we’ve had these couple weeks. What is it?

I advocate an intentionally overbroad definition of disability. And I definitely see a tendency, with certain medical conditions, not to identify — on that inner level, what “feels right” — as disabled.

I support every person’s right to self-determination, to define their own experiences, and to identify however feels most right for them. I do not want to try to pressure people into identifying in a way they do not feel comfortable. But I do think that part of this tendency, this reticence, is rooted in a sort of ableism. Not ableism as in “internalized negative feelings about PWD” — but ableism as in “a certain understanding of how the world works and how society is/should be structured” … or, you might say, a certain model.

I want to explore a few things — explore our assumptions behind the word “disabled.”

MORE

by amandaw on at 9:56 am 2 Comments
Tags : accessibility, body image, chronic illness, culture, defaulting, disability, diversity, feminism, identity, justice, language, mental illness

Things that make my life easier: TENS edition

[I am having with the WordPress backend and cannot paste the full post here. Once I get WP upgraded I'll put the post here as well. Visit Feministe to see the post for now.]

by amandaw on Saturday, July 11, 2009 at 3:20 pm 2 Comments
Tags : accessibility, body image, chronic illness, class, disability, endometriosis, etsy, fibromyalgia, healthcare, home, identity, penguins, personal, photos, pittsburgh, sports, stories, TENS unit, welcome to my life

Let’s talk about sex

Disabled sex, folks. It’s time.

This is an official request for your anonymous contribution.

I am working on a post about ableism in “liberated” sexual culture (including feminism, but not limited to it). And I really think there is no better way to illustrate this than with real words, real experience.

Do you have, or have you had, a disability (or, if you do not identify as disabled, do you have a condition which results in some sort of mental or physical impairment)? If so: Tell me about your experience in the bedroom.

Specifically, I am looking for ways your sex life differs from the “liberated” construct. I want to hear how your disability affects your sex life, in negative ways, in positive ways, and in ways that go beyond that dichotomy.

I want to make clear that “sex,” here, should be interpreted in the broadest possible way. Sex with or without partner(s). Het or queer. Any sexual bits included, any sexual act, no matter how long, short, light, heavy, simple or complex. If you think of it as sexual, then yes, it “counts.”

Some questions to start your thought process:

  • What difficulties do you face?
    Is there anything you are prevented from doing, or prevented from doing “normally”?
  • And how do you adapt?
  • What do you do to make sex enjoyable?
    How do you change things, modify things to make them work for you?
  • How do you create new ways to find sexual pleasure?
    What do you do that you’ve never seen anywhere else?
  • Do you feel like you’re the only one who does (a certain something/a certain way)?
  • What do you do? What do your partner(s) do?
  • And how does it feel?
    What do you experience, what is going on in your body and mind, from start to finish?
  • Do you orgasm? How easy or hard is it to reach it? Is it important to you to orgasm?
  • What is it about sex that you enjoy? What is it that makes it worthwhile?
  • How important is sex to your life?
    How much do you want it? have it?
  • Has media portrayal of sex affected you? Societal attitudes?
    What have you seen or heard, been told, been treated like?
  • What have you gone through in seeking health care for sex-related issues?
  • Do you have any other stories or experiences?

I do prefer that entries not simply be answers to the above questions survey-style; I want to hear your experience in your words. Tell me a story — write me a poem — paint me a picture — however your experiences are best expressed.

Again: All answers will be anonymous. I will not attach any names, even pseudonyms, to these entries; they will simply be presented as they are.

To contribute, click here.

The link should take you to a page with one text box and one line for your email (which is optional).

If you need to contact me:
My email is amndaw (skip the second “a” in my name) AT gmail DOT com.
Alternatively, just use the form above to say “Hey, email me back!” making sure to provide your email address.

A few more notes:

If your contribution is anything other than unformatted text, contact me (see above) and I will work things out with you. For example:
If text formatting is important to your piece, you can send me an Office/OpenOffice document.
If you wish to express yourself in visual media, you can send me a still image of any file type — I will do any conversion necessary to display in a web browser.
If you prefer to create a video, you can send me the video file (I can point you to services for sending large files if need be, or I can help you upload it to an anonymous account for this purpose).

If there is anything in your piece that can potentially identify you (especially recorded image, video and audio), and you are absolutely comfortable with that, that is fine — but I prefer that anonymity to remain the default, so that more people feel safe and comfortable in contributing.

A tentative due date for submission will be Saturday, June 13, 2009. That gives you roughly two weeks. If you want to contribute, but that time frame does not work for you, contact me and I will see what we can do to make things work.

[shameless] Link around!! The more entries, the better. [/shameless] :-)

Thanks so much to everyone!

by amandaw on Friday, May 29, 2009 at 2:32 pm 1 Comment
Tags : beauty, body image, chronic illness, control, culture, defaulting, disability, diversity, feminism, healthcare, identity, justice, mental illness, metablogging, personal, privilege, problematic attitudes, roles, sex, sexuality, stories, the media

“Low Self Esteem: A Man Made Disability”

Oooooh boy, Dove, you have no idea what you’re getting into here, do you?

The subcontext here is incredible. Jess uses a wheelchair. She’s happy and perky and having fun. Katie is visibly healthy. She has low self-esteem and her self-hatred keeps her from even being able to greet Jess when she comes to the door. Instead, she slouches to the ground in despair.

There is a reason they put Jess in a wheelchair. In doing this, Dove sets up a contrast: the physically disabled girl who feels good enough about herself to go about her life; the able-bodied girl who hates herself so much she can’t even go out with the people least likely to judge her at all.

The only way this contrast is meaningful is if it rests on the assumption that the physically disabled girl has reason to think less of herself.

Dove, here, is deliberately driving home the message: It’s such a shame that the “normal” girl thinks less of herself than does the girl in a wheelchair!

The shame conveyed here is that each girl does not recognize her true place in the social order. The normal-bodied girl is pretty, but can’t see her prettiness in the mirror. The girl in the wheelchair does feel good about herself. This is out of order, backwards. The girl in the wheelchair should be the one who sees herself one step lower; the normal-bodied girl should recognize her innate goodness in being able-bodied and conventionally attractive.

The dissonance Dove deliberately draws here relies on the recognition that Jess is diminished by her disability, but Katie is so dragged down by her poor self-esteem that she ends up in an even lower place than Jess. This is not right! This is not how things should be!

How should they be, then?

Of course, the commercial is also contemptible for the simple reason that it uses the girl in the wheelchair as an object to develop the human character of the able-bodied girl. In this setup, Jess is not a character; she is a tool. We don’t see Jess’ character explored, developed, reflected upon. She is introduced for only one reason: to act as a foil to Katie. To demonstrate just how low Katie has sunk.

Because you know it’s a fucking shame when she falls even lower than the cripple.

DIsability, here, is set up as an awful tragedy, the lowest a person can sink in life. This is what the title communicates. Disability is a reason to be sad, upset, mournful, pitied. This is what Dove purports to save young women from — a life of suffering. This is the reason Katie is to be pitied: she has fallen into the state Jess should be in.

Finally, the issue of appropriation. I’ll make it simple. Never, ever, ever, ever appropriate another group’s cause. White folk, you are simply not allowed to flip a situation to make it on a black person to try to communicate how outrageous it should be. Abled folk, you are simply not allowed to purport yourself disabled to communicate how tragic something against you is. Period. (The comparisons are slightly different in effect and implication, but my point applies to both.)

This assumes that to be disabled (black, gay, female, etc.) should always be understood to be a bad thing. It assumes that discrimination against disabled/etc. folk, or other forms of oppresion against them, are always taken seriously. And the subtext in these comparisons just screams out: How dare *I* be treated like those people!

Like it or not, whether you were thinking it or not, when you use these tropes, you imply that wrongs against you are worse than wrongs against the other group, that people should be outraged that you have been lowered to their level. What you are protesting, like it or not, is that your privilege over them has been violated.

Seriously, there is never a good reason to use the comparison trope. So just don’t do it. Ever. Period. End of story.

Via Wheelchair Dancer

by amandaw on Sunday, April 26, 2009 at 4:41 pm 10 Comments
Tags : advertising, beauty, body image, brain fog warning, control, disability, feminism, fuck that, head asplode, lgbtq, privilege, problematic attitudes, race, rants, roles, the media, video

Letters from my mother

Sissie quit taking her Insulin and went into almost a coma, she is so stupid, she said the Insulin was making her fat, so she quit.

Sigh.

by amandaw on Sunday, January 18, 2009 at 1:33 pm No Comments
Tags : beauty, body image, chronic illness, family, fat, fragments, fuck that

beauty

behold:

Our focus is often (and should be) on the women targeted by this hate, the women who suffer under this stream of threat and this actuality of violence. It should be focused on the actors and co-conspirators as well. Aside from those who take direct part in that hate or violence, another important piece of this is the effects of this misogyny upon the male in general. What misogyny does to the male identity and psyche and sense of peace and self-love. After all, the Female is not hated in a vacuum. So, too, is the Feminine, entire. And that cannot be walled off to one gender. This loathing, this hatred points back to what we know to be part of our natural being.

Men (as boys) are “asked” to join the oppression (under great threat of both social humiliation and physical violence and over and over, too) and to do this of course, we must snuff out/suppress the Feminine in ourselves. This is, of course, a great pain and loss to a human. And as this loss cannot be mourned by implied decree, this pain becomes a bitter, perverse mess that is blind to itself. And so men not only join the hate against women, but they then envy women for their freedom (to still be allowed) to be expressive, emotive, beautiful, affectionate, relaxed, vulnerable. And the loathing to self-loathing ties to envy ties to sorrow and loss and is given ground, and men are emotionally insane when modeled as instructed. And they act out this insanity even when they don’t know why. It is because they have too often been prevented from even knowing who they are to begin with.

…

For if a man cannot love the feminine aspect of himself, nor can he love a woman. And if he is hiding from that half of himself, he cannot fully see a woman. And if he would abdicate half his power, he is weak to the point of failing.

…

Because Colonization (and Patriarchy, too) are about control. And thus, Prop H8. And thus stiff collars and the Western Modes of acceptable and authoritative dress. And thus stark unforgivable lines. And thus dichotomized stances and laws that no person lives under comfortably and organically, unless they crave unnatural and aggravating wires strapping them down to the earth, making up for all the strength they have abdicated and would have used to guide and know themselves otherwise….

by amandaw on Monday, November 24, 2008 at 9:30 pm No Comments
Tags : beauty, body image, control, culture, feminism, identity, justice, privilege, problematic attitudes, race, roles, trans*

Mmmmm, Schadenfreude… with a side of B12

Yet more bad news for the upper-class white liberals who are perpetually Concerned About Your Health(TM). Go figure.

by amandaw on Friday, November 21, 2008 at 12:35 pm 1 Comment
Tags : body image, chronic illness, class, color me unsurprised, disability, fat, fuck that, healthcare, privilege, problematic attitudes, race, scams, the left, this all sounds awfully familiar

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amandaw is a proud woman with a disability who doesn't have nearly enough time to deal with all this shit. Her space is dedicated to the examination of feminism, politics, the social model of disability, and the antics of her beloved cats. Things won't always make the most sense, so hang in there with me—but at least we'll have some pretty pictures to make up for it, ya?

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