three rivers fog

untitled

july 31, 2010

engagement.

I’m having a really hard time with it lately.

I’ve been on a medication for months now that is causing mood swings, suicidality (more serious than has ever happened to me before, even through far, far more traumatic events) and significant dissociation. My doctor won’t give me a prescription for the old medication (which we know works, but hoped this one might work better) until I see him and he isn’t available until well into September. I call every day for cancellations. I have yet to catch one.

I can’t connect to my own experience. There are these huge changes in my life and I can feel a radical shift in my political consciousness but I cannot even figure out for myself what it is, much less articulate it for the people existing outside my shell of skin. Can’t even describe it to my husband or best friend, much less to strangers and minor acquaintances.

I want to be out there. I want to be doing this work. I want to be out there thinking, speaking, shouting. Pushing, pulling, exchanging. My heart is in this so deep.

It has been continual frustration over the past year, year and a half, as I’ve lost connection with myself, lost spoons, lost wherewithal, watched as so much has passed me by and all I can do is putter along the side of the highway, slow and careful baby steps beside large and powerful vehicles zooming by in a flash.

I can only do so much and unfortunately, what I want to do requires so much of me. It’s not as easy as “think smaller,” do little things, they still matter, etc. Because even the little things require a base investment that I am just not able to afford most days.

So I think to myself, hey I have time tomorrow, this weekend, next month. And by that time, my mind has lost connection with whatever it is I was wanting to do, read, think about, write about. And to be able to go back to it, I have to give that base investment again. Take myself away from whatever is going on that moment, and immerse myself in this point from my detached unaware fleeting past, and try to re-connect to whatever was going on in my head at that time.

Perhaps not surprisingly, this never really works.

So I flit about from day to day, trying to keep my brain awake, taking in information, revving and whirring and trying to do something with it — but I never quite move far enough up the levels to the ability to engage. To stop struggling to just exist, to start doing something other than just be.

And the day passes, and I haven’t done anything, and I go to bed and wake up the next morning to start from the bottom again.

***

i’m going to be doing this in small, incomplete doses. it will be disjointed, incoherent, and inconsistent. the parts may not seem to have connection to the whole, or may seem to repeat themselves. this is the only way I can do things, so bear with me.

***

I’ve been doing a lot of reflecting in recent months.

I honestly don’t know what to do with myself.

My ability to be meaningfully involved with the various communities in which I have found place has slipped away. The condition I find myself in now leaves me mourning the loss of my ability to consider, to plan, to change or to modify, the things that I do.

I can only do what is immediately available to me. If something is not immediately available, I am not going to be able to do it – at all.
If I am writing, I can either write the words that spill out of my brain or write nothing.
If I am reading, I can either read the words I can comprehend right this moment or read nothing.
In all that I do, I can either engage with what I am emotionally capable of engaging with or not engage at all.
No matter what, I can either do something right now or not do it at all.

The me that is available right this moment is the only me that you’ll ever get. If I can’t reach every part of me, then those parts of me aren’t going to be available. Only the parts that are here right now effectively exist for you.

***

august 1, 2010

I’ve noticed certain patterns in my social life. In the way I interact with other people. In the way I conduct myself as a member of the community. In the approach I take to working with others.

I am not liking some of what I see.

I’ve spent the last six months or so trying to dig deep, clawing down and down, trying to reach the depths of my soul, so  that I can see them. So that I can figure out why things have happened the way they have — but more than that — what is within my capacity to change that will allow me to become the person I want to be?

***

august 6, 2010

I don’t know whether this is a function of what was modeled to me as I grew up (my mother has borderline) — or something innate in me just starting to come out — or whether I’m misinterpreting it altogether.

I do know I’m ok with it. It’s not wrong. It’s just difficult to deal with internally.

I lay low at first. Then I feel out my place. Then I grow comfortable, and I assert ownership of my place. Then something happens, something huge or something tiny I don’t even commit to memory, just something, and I grow scared. I look inward. I want to change something. Not in the sense of “something needs to change” but in the sense that I have identified the specific thing and know what to do about it. And this is where things fall apart: I cannot change anything, large nor small. I can only throw out the whole of me and start over. All over.

I’ve done it a few times. And I’m tired. Just tired. That building process takes energy. Energy I just don’t have anymore.

And when I think about it, I like my place. I’ve set things up pretty nice. There are aspects of me I wouldn’t change for a minute. I’ve grown into something that I like, and appreciate, and value. Immensely.

And I’ve made connections. Come to know people. Come to have people know me…

but that’s what’s so scary.

Because I can’t change. Not consciously. Because people have one concept of me in their minds… I’m not me, I’m not mine. I could change me, this person right here, but the me that exists in all those other minds out there… I would have to change each one, individually, one by one, and some of them wouldn’t change, and some of them people would fight changing, and I would have to assert my change, my right to my change, and put forth the energy, energy, energy…

Because I’m not me. I’m not a person. I only exist insofar as other people have concept of me in their minds. I don’t exist in reality. I exist in other people’s minds.

If I need to change — and I don’t have the energy to go from person to person, changing their minds — then I have two options: remain the same…

… or leave it all behind, and start over.

but I can’t. I don’t want to. I don’t want to dammit I finally started building a real person and now I am losing it, losing that, connection slipped away. Here I am again, removed of reality, a personless entity. Confronted with something difficult, the tangible person might just slip away, and I am a ghost again…

***

that started out being about the way I handle relationships with other people… and ended up being about the way I handle being.

***

august 7, 2010

Today I am going to MedExpress because I broke down this morning and almost killed myself. My medication is part of it. But my situation can’t be removed from it either. I can take care of the medication part now. The other part takes a long time to process.

***

written privately:

I have been withdrawing further and further, from everything, and every single time I stick my neck out even an inch and try to say something I end up regretting it. regretting ever speaking a single public word. regretting being a real-life person that doesn’t close herself in one room for the rest of her life, only observing, never participating.

I’ve been regretting a lot of things I’ve said and done in the past.
regretting a lot of my patterns of behavior, a lot of my own tendencies.

trying to figure out WHAT is bothering me. WHAT is wrong.

doubting the “social justice” structure, doubting the Set Of Rules that are set in stone and the choreographed steps of the One Way To Do Things that one must follow at all times or else be consumed in abuse.
that includes “callouts” it includes gotchas it includes the focus on Bad Words over all other forms of oppression.
have ALWAYS hated the word “ally” and have come to hate the entire idea of binary identity, you are X or Y, and the Rules that must be followed to count as either/or. always hated the way it incentivizes people to get involved in matters of justice insomuch as it boosts their cred to other people. rather than to help a fellow living being.

I’ve been wondering, fuck, how are we raised as children that we are extremely fluent in Good and Bad Words, in tv shows and music, but as a community can’t meaningfully engage on all the thousands of little pieces of people’s real lived lives? the way we treat each other, the way certain types of people are left to starve or left in solitude or left to die because it’s not our responsibility to _____.

I hate these discussions. cant fucking stand them anymore. don’t know what to do with myself when I get home, because I can’t imagine being happy with myself ethically with being involved in anything. anything.

I can tell you that the more I look back on everything I have done, the more I hate myself. over the past three and some years.

there are a few things I am proud of. and will always be. but they can probably be counted on one hand, the things that I would not change. out of all the thousands of words I have spoken, or nto spoken, for those three years.

I’ve been working INTENSELY on processing this. figuring out WHAT is wrong and then figuring out how to apply that.
i spend every single day thinking through all of this.

[a particular incident] was radicalizing for me, and not in the way most people mean when they use that word.
i think it broke my spirit.

I am thinking more and more that I give up on having a conscious part in this, or any community focused on justice, because I feel like being known as A Person starts to poison my ability to act toward the actual betterment of hurting people. it poisons things from the start. I don’t know if I, just me amanda, am capable of handling a public presence at all without doing some really awful things.

I just don’t want to say I’M DONE GOODBYE to everything and then find a way to be a help. to be wholesome. and go back on my word.

I just want to poke along in quiet, just be an average nobody who isn’t trying to be known just wants to do things to herself and let people take from that what they want but not go and engage them when they do. I want to exist as just words. not a person.

The only reason I can’t quit, if I’m 100% honest, is because I can’t EXIST without having this community and this reading to feed my soul. If I give up my involvement, I basically give up on living, because I haven’t found anything that feeds me in that way other than this, and I won’t survive trying to walk that gap. If I quit, I will die.

I don’t know that there’s such a thing as organizing that doesn’t turn to shit.
I don’t know that humanity can return something worthy when we try to invest in it.

***

august 8, 2010

I don’t even know what I think. I spent  this weekend thinking about blowing everything up. This blog, my identity, my involvement in anything at all. Today, I feel ok with continuing as who I am. Knowing that I can change, and that’s a good thing. Standing by what I’ve said in the past, because it’s more honest than trying to erase what I’ve done. I’d rather be real but complicated than be a squeaky-clean, artificial symbol of perfection.

I thought back on the things I’ve written, and there are some things that I think are good. and successful. and important.
and I don’t want to blow those things up.

I have no idea how I’ll feel tomorrow.

***

I think that for the health of a community it is essential that a wide variety of approaches are supported, encouraged, nurtured, valued.

No community can thrive, and make progress, for so long as it limits the range of human reaction in its members.

This means that anger must be accepted. Embraced.

It means that being measured and reasonable must be allowed from those who feel able to be as much.

It means that being measured and reasonable must never be glorified or set up on a pedastal as the one true way.

When people declare that they cannot tolerate sarcasm – or hostility – or any other negative-realm reaction — they declare that they will not recognize those who feel or display these things as fully human.

It is fully possible to feel one way yourself — to tend toward certain patterns of behavior yourself — or even to look into the advantages and disadvantages inherent in various approaches to engagement. It is ok to recognize that anger can skew things certain undesirable ways.

But you must also realize that “reason” has disadvantages. “Logic” skews things certain ways. Being “even-handed” or “level-headed” or “fair” can cause harm on the margins as well.

And we all must recognize that anger is an integral part of healing. When a community, or an individual within it, faces trauma, survives abuse, endures violence and coercion — part of human reaction is anger, even hatred of the other party, or those who enable the abuse.

Some people never feel it. Sometimes, it’s merely one of many phases a person must go through to make right. And for others, it’s one facet of the prism through which they view their day-to-day life, in perpetuity.

And all of  that is ok. Because all of that is human.

It is dangerous to deny these things to people. It is harmful to stunt their growth, their recovery, their building, by only allowing, or only approving of, the pleasant and easy parts of them.

Perhaps you want no part in an activism that engages in snark. Or that doesn’t frame itself for the benefit of those outside the community.

I believe it is far healthier for the future of the community and the rest of  the world to meet people where they are, and work with them, than to wrinkle your nose at their messy reality and wash your hands of them.

***

All organizing is doomed to replicate the very structures it purports to destroy.

There is no such things as a human being free of influence. All human beings are shaped and moulded creatures, moving through their world differently than any other human being around them. All of the things that happen to us, all of the things that are impressed upon us, are irreversible. We can take those things and move in a somewhat different direction, but we can never be free of them altogether.

Given this, there is no possible way for an individual human being to create something that is not foundationally built upon the very things that person is trying to counter.

This is true in so many ways. For example,

By fighting gender oppression in the US, we are accepting as a basis the gender structure that the US maintains, and forming ourselves, our lives and our work around it.

By fighting gender oppression in the US, we are accepting as a basis the social structure that belongs to it, and imposing it on those who live outside of it, living entirely different types of lives under entirely different influences.

But even if we were to (claim that we) forsake that structure and instead build something entirely, completely new — we still begin that structure in the ways we have been taught to build. We still operate together in the ways that we have been taught to operate. We are still using the same language we began with, still interacting by the same patterns we began with.

There is no way to escape a system. Ever.

This means that movements are guaranteed to devolve in certain ways. Guaranteed to commit injustices against the people already beat-upon. Guaranteed to hurt each other, to experience divisions, as time wears on.

***

This does not mean that therefore, organizing is useless. That therefore, movements are worthless.

What it means is that we will perpetrate the worst of sins against our fellow human beings and we must accept that it will happen. We must let go of the idea that we can ever, ever, be free of the virus that infects us. The tighter we cling to it, the more the injustices spiral out of control.

***

I actually think that part of the beauty in life is found in the ways that we build imperfect things upon even more imperfect bases. The way we take things that have myriad problems, and push and shape and coax them into being something new, something entirely different, something existing on its own right — something still imperfect, but deep.

Deep.

Deep, containing multitudes, changed and changed and changing, storied and historied, inconveniences and complications…

We will never create something out of nothing. We will never begin a movement that is brand new, that is pure and free of mistakes at the start.

Perhaps we are better off for it.

***

can I have that kind of history? can I be that kind of complicated? and still be valuable?

***

august 9, 2010

I’ve found over the last few months, my own internal reaction to the same sorts of stimuli is broadly (but slowly) changing.

I’m finding myself more reflective. More peaceful. More generous in consideration.

I’m mulling over things and reaching different sorts of conclusions.

I like these things, because they are pleasant to experience.

But I refuse to think of them as being better. More moral. More right. I refuse to comply with anyone who would expect those things of me, or of anyone else. I refuse to have these things set as ideal, to create them as a standard.

Because this is just another route to edification. To building and sharing and bettering.

The different conclusions I reach mean that I get to internally enjoy a wider range of thought now — not that these conclusions supercede the older. Not that they are “right” and the older “wrong.”

The benefits that I give to others (of the doubt – of kinder, gentler interactions – etc.) are benefit that they do not deserve, and I am not obligated to give. They are benefits, not rights. They are not the right thing to do to one another. They can elicit certain desirable reactions in those others, such as being more likely to listen, more willing to consider my point of view. But I also know that human beings have a hard time changing until they get a spanking. That sometimes, it takes a rough fight for something to click — or for them to understand the importance and necessity of the concepts being communicated to them.

To really grasp the depth.

The right thing to do to another person is to engage with them without oppressing or abusing them.

That is a very wide set of boundaries to set, allowing for a very wide range of interactive approaches.

Including screaming “fuck you” at someone who has hurt you.

Even when they have no contextual understanding of why – or even that — you are hurt.

They don’t have a right to understanding. You have a right to be free from abuse and oppression.

Roughness, on the other hand, is a necessity.

A child might never understand why sie is supposed to avoid the stove if sie is never allowed to experience the pain of the burn.

A person might never understand what’s so bad about what they’re doing if they are never exposed to the pain that they wreak.

Pain is necessary to human experience. Pain is a signal that something is wrong.

***

I’ve made the mistake of trying to protect my husband from ever having to feel bad about anything he had done to hurt me.

I’ve made the mistake of trying to protect my husband from ever being exposed to the pain that I was experiencing.

Because…

Isn’t it just as bad –

Isn’t it equally wrong for me to make him feel pain?

Isn’t it equally bad for me to expose him to that pain?

If he knew that he did something wrong, why did I have to add, for him, guilt and regret on top of knowledge?

If I was hurting inside, then there was already enough pain for the two of us — there’s no need for me to add more pain — right?

Wouldn’t it be cruel of me to reduce my pain by asking him to feel some? Wouldn’t it be highly selfish?

Two wrongs don’t make a right — right?

I’ve made that mistake before. In the end, we almost lost our relationship, and both he and I endured personal (related but separate) traumas — because we were denying each other the privilege of sharing in one another’s burden. (You know, that whole thing monogamous relationships are supposed to be about.) We were trying to shoulder burdens individually, avoiding honest communication that would, yes, cause immediate-term pain, but which would be better for the health of our relationship in the short and long terms.

And I discovered something –

– sometimes, I have to let him feel that pain that exists because of his own actions. I have to let him feel the true weight of it. I have to let him experience the injury of it.

Because if he never feels that pain, he never makes that intuitive connection about why his actions were harmful.

He has to burn his hand to understand that the stove is dangerously hot. He has to feel the searing pain — and he has to work on healing his own wound.

I have to be there with him, through all of it. Be there to hold him up and help him process and recover.

If those things don’t happen — then he cannot be there with me through my troubles. For him to “be there with me,” I have to open up and let him go through the things that I need to “be there with him” for.

One cannot occur without the other.

If even just one of the two doors is closed, nothing can get through.

***

i realized smth abt myself

i shouldn’t let ppl “let me down” bc i shouldnt be expecting them to be perfect allies, a concept i hate applied to me, so why do i apply it to them

they are ppl they will make mistakes they can do hurtful things

but i shuoldnt turn it into a personal slight or a way theyve personally failed me

bc that makes it about a rel’ship btwn 2 ppl and not abt the structural issues and cultural attitudes that need addressed

those attitudes n those structures can be changed

we can work on that w them

not end that conv prematurely to focus on how they failed me…

***

august 11, 2010

I am too tired to write today.

I find myself wishing that I could just step into an alternate life space. Like stepping into clothing. But I would step into being me – the me I want to be. Already have the history, the approach nailed, the habits set, the emotional and communicative vocabulary mastered. Just step into the outfit, zip up the side, and be there.

I can imagine a me who is comfortable, happy, and at peace. Who has interactions she is proud of her behavior in.

It doesn’t mean she’s necessarily going to be the popular kid at school, that everybody is necessarily going to like her. Or that she’ll never have conflict, never be at odds with someone, never have a frustrating exchange that goes nowhere and wears her down.

It just means that she will be calmer. And gravitate toward different modes of conversation. And maintain a different focus.

Then again… can the first ever be true, when the second is allowed for? If people don’t like me, if I have conflicts, if I make mistakes, will I still be happy with myself, and at peace? Will I still stand by my own actions?

***

I realized something else today.

So much of what goes wrong in many of these conversations happens because of inelegant phrasing, misunderstood points, poorly-connected concepts, poorly disclaimed assertions.

So much of what I kick myself over, I do because of these things.

But, I think: I just have a physical disability that sometimes has cognitive symptoms. Sometimes my wording is clunky and I have trouble really communicating my point; I have to beat around the bush and hope that people will look toward the center of my circular path to try to deduce what I am actually trying to say.

I fault myself for those things.

But fuck. Why? Why do I fault myself for that? Why do I accept the standards practiced by wider society, wherein speech must be precise, artfully navigating complicated subjects, or else the speaker cannot be taken seriously and any misunderstandings are hir own fault? Those standards serve to effectively shut out certain people from public conversation. People who lack access to high-quality, long-term education. People who live with learning disabilities or cognitive disorders. People who learned English as a second language. People who speak nondominant dialects of English.

These people will suffer a greater burden under that sort of standard, fighting against constant resistance, dealing with far more misunderstandings and having their arguments endlessly derailed.

All because of an insistence on maintaining this standard built on expectations of a certain ability, a certain background, a certain experience.

and no, I will not apologize for  thinking that is fucked up.

what I will do? is try to put into practice a flexibility, and budget a little more energy toward, as a standard, making sure I am understanding what a person is trying to get across, and allowing room in any response for my reaction to take different direction as my understanding of the conversation adjusts to the person’s expressed meaning.

That does not mean that people can rationalize their way out of saying offensive things.

but… maybe it means I will let go of coming down hard on them, especially from the start. let go of the need to make a Big Deal out of what they just did wrong.

because maybe, I’m not even understanding what they did.

this is something I *hoped* others would apply to me, all along, with my difficulties with spoken/written communication. a benefit I hoped some would offer me.

I don’t think I’ve ever really connected, on that deep-down level, on why, and how, to offer it to others.

and I really need to do that.

I really hope I can do that.

***

I can offer you explanations why I have done certain things.

Why I have rushed to judge people.

Why I have judged people. at all.

Why I have — while knowing I hated the very idea — given in to labeling certain people or groups as Bad People because of certain things they had done wrong.

and discounting everything they say or do from there on out, because of those wrongdoings.

(i will not take argument about the fact that they were, in fact, wrongdoings.)

Why I have invested in “call-out” culture.

Why I have practiced — and propogated — The Rules(TM). the set of laws governing the precise process a person must follow in a given situation. the precise steps they must take. the precise words they must say. the precise reactions they must offer. [sometimes, The Rules(TM) call for a person to offer the "wrong" reaction, instead of the "right" one, so that The People may have a target for blame, feigned righteousness, and ridicule. if the "wrong" reaction is not offered, The People have the right, under The Rules(TM), to make one up wholesale.]

(by the way, what is the definition of “objectification” again? making a living, breathing person into a vessel for someone else’s purposes? … hm.)

gdamn, I am horrified at how I have participated in that culture. and how I have participated in forcing it on others — in completely overtaking a conversation about a concept — sometimes about people’s lives — and turning it into a conversation about how The Rules(TM) have been followed and how they have now.

that shit is poison.

***

I want to believe in redemption. I want to believe in power. the power to improve. the power to stretch, to learn, to grow.

I want to believe in capacity. I want to believe in potential.

I want to be there alongside someone who is pushing and pulling, struggling with new knowledge that they may not have even accepted yet — but often they do accept it, and process and digest it, and over time incorporate it into their daily life…

I hate the way I’ve discounted the very possibility of any of that, sometimes.

I hate the fact that I know I’ve made people feel that way — that their potential is being discounted, that having done one thing wrong means being written off the rolls of the good for eternity.

***

august 12, 2010

written in early june, unfinished (i say that like there’s any other status for anything i write):

Maybe I’m not supposed to say it, but I’ll say it: I regret pretty much everything about my involvement in that Feministing boycott.

Look, it was bullshit. Bullshit what they did, including dropping the “tone” argument (in those words) on me for being mildly assertive. Bullshit that they think a history of five posts that almost all played into exactly the disability tropes we want to deconstruct constitute a history of meaningful engagement with disability. Bullshit that they are OK with having a comment space they don’t want to put the effort into maintaining — leaving it to the wolves.

But here’s what I regret, truly, deeply, to the bottom of my soul:

Getting into the blame-the-individual game.

It honestly eats at me. I hate it. I just hate that I went there. I hate that I did that. I hate it for a variety of reasons.

It sets me, or the criticizer, up as somehow more righteous than they, the people/group being critiqued.

That sets me, the criticizer, up for failure when it is revealed that I am no perfect child myself, and have my own issues and have made my own shitty mistakes.

It makes it difficult to engage with them, the criticized, if they do make a genuine effort at improving, even if they stumble as they navigate new territory (even if it’s territory that shouldn’t be new).

It divides the audience, you, into camps. People on Side A and Side B and over there, people who don’t give a shit about this drama and just wish we’d all shut the fuck up already. (Those people don’t matter.)

It makes the whole conflict into a controversy to be consumed.

And that’s the issue here. That’s what I’ve learned in the intervening time. Either it’s a controversy that can be parsed for the consumption of the hungry masses, those eager to find a way to make a name for themselves — by playing the reasonable one, or by staking out a righteous position — and those who are just using your issue to settle old grudges … or it’s nothing.

Either it can be consumed as a product, a way to prove something about yourself, the bystander, the individual — or it’s not worth any attention at all.

Pay no mind that the struggles of marginalized people every day go on in ways that are not easy to gin up into “controversy” — ways that are messy, difficult, not easy to navigate — but because they are not of use to the observing masses, for the personal betterment of the people unaffected, they aren’t even worth more than glancing observance. Onto the next Gawker slideshow.

***

I think part of the reason I tended so much toward a flip of a finger and a “fuck you” was because I didn’t know how to assert my own boundaries.

I didn’t know how to say “This is more than I can handle,” or “You have crossed a line,” and add, “but I cannot articulate what or why right now, and I should not have to” … while still being ok with what parts of the conversation were OK, and perhaps (but not required to be) OK with addressing those without addressing the bad parts.

Part of why I would start flipping out and go into pile-on mode is because someone crossed a line, and I had these intense feelings of violation inside me, but to acknowledge all the other parts of the conversation that didn’t cross a line felt like it would be denying, to myself, the feelings that I had. That were very real.

And what I have desperately needed, all my life, is realness.

To deny those feelings would be to deny my very self, my very being, my very existence in reality (as opposed to dissociated ether).

It would be a violent act against my own body, and I could not do it.

But I couldn’t identify that boundary. I just… knew it was there, and had this hot, intense, wordless instinct/impulse/inner knowledge that I could not violate it, that to violate it would be as to death. Just that incredible, deep, burning feeling of being trapped, knowing something is threatening your life. What do you do to that? Except lash out, beat out, violently thrash about in a thoughtless attempt to survive, without even having the time to know what it is that is threatening you?

I feel now, like… I see something that crosses one of those lines, and my heart wells up in my throat and I feel the burning behind my eyes, but my self-awareness is on, and I can stop to consider what it is that is bothering me, and what it is that seems wrong, and evaluate the idea and its validity, and possibly engage it on non-flipping-out terms.

I’ve also started asserting, to myself more than anyone?, my right to not engage on things that I know threaten my being that way.

Like when I’m this close to committing suicide, I had offered thoughts on a touchy subject, and someone responds to it in a way I can already tell is not going to be pleasant for me.

I can respect that person, and know that she was probably, actually, making some good points (while I might have disagreed with her on a fundamental basis, or had a different perspective) and important pushback. But still acknowledge that this discussion threatens my being and just stay away. Click away or scroll away from any mention of it, stick with things I know I can handle.

I never used to be able to do  that. To stop. And assert that boundary.

If I felt connected to something — a person was saying something directly to me, or it was something relating to me the person, or something which is of deep and far-reaching importance to me — I felt… not obligated… but drawn, strongly to engage with it. Even if it was something that was going to upset me during a dangerous time. Even if it was something that had a good possibility of crossing certain lines. Even if it was a person I knew was acting in bad faith, or just plain known for being intentionally difficult and cruel. My attention was just… a given, something that wasn’t even under consideration, of course I had to pay fucking attention, and possibly put in my two cents. Usually in one of those nefarious tones.

I could not look away. Boundaries were extremely difficult for me to manage. Extremely difficult to make myself create them, and maintain them. Tending to them, caring for them — out of the question, because I was terrified of them.

I’m learning, slowly.

And I think it will be better for me, in managing my relationship with my peers and community members.

***

august 13, 2010

focus on language can be a learning phase for ppl new to the movement/concept of disability rights

we shouldn’t focus on it to the exclusion of all else, but it is a subject that newly-political folk can cut their teeth on, a way for them to get used to disability centered analysis, and talk of it should not be suppressed

tabs otoh need to leave language alone, because no matter what when they speak up to enforce good words/bad words, they are participating in a diluted/lite version of dis. activism that refuses to go any further than the safe and easy parts for them to modify, in a way that helps them make a name for themselves as “true allies”, again taking the entire focus off the conversation about any number of things affecting disabled ppl, and again making tabs dominate conv. (now instead of being about whatever topic, including disabled ppl talking abt their lives, it’s a tab person talking over everyone about whether or not some person said a bad word)

language is important, but language should not supercede all other concerns.

tabs need to let the disabled ppl talk about language, let them be the ones to decide when a word or phrase is harmful, let them be the ones to point it out in the situations they decide are appropriate. if they want to support pwd in this matter, they should not talk about it themselves, but should lift up and promote the works of pwd who talk about it. rather than talking themselves, they should reference and direct other people to the works of pwd.

***

I’ve been struggling to make sense of everything that is going on in my head, that has been going on for months.

There are so many changes I want to make. Part of why I try not to run around declaring my intent to make them is because I have to identify them first; I have to figure out what’s wrong before I can figure out how to make it right. Sometimes it takes me months of shaking things around inside my head to get some of those ideas to fall out my mouth in words rather than lurching gibberish.

But part of it is, as I wrote a little while ago:

Right now I am trying to refocus. To take a look over my activism and engagement. And seeing shit I’m embarrassed about. And hate myself for. And want to change.

But as my husband and I have done in the past: don’t make promises that you will change. Because what matters is that you do. And you can’t guarantee that you will. So I would rather you just hold your arm around me and stumble forward with me. And work on your shit. We will only ever know if the other is going to change once that change is put into effect. That takes years. Years.

Years.

***

I wonder sometimes whether we do injustice to the whole picture of people’s lives by trying to make judgments narrow slivers of their experience.

It manifests itself in the way we try to slice out human experience like we do sections of beef. The way people are easily __categorized__ into binary states of being, into neatly-delineated pre-set __identities__, the way those identities can never combine into something different than the simple sum of their parts, but must be as easy to understand as the addition of single-digit whole numerals.

But another way it manifests is in the way that we judge people’s actions.

The way it’s “just as bad” when the woman beats back on the man. (to the point that hetero women often get arrested for DV because their abuser knows its another avenue to abuse them. case in point, my sister with her ex-marine husband with a buddy in the system.)

because when you look at one narrow slice of that person’s life: yeah, the pure act is “just as bad” no matter who does it.

The way DV victims will often not let on that they are being abused to the people around them — family, friends, teachers, coworkers — because they know of the swift and unequivocal condemnations of the insidious beast that is that person’s partner.

because in a situation of your hypothetical het man and your hypothetical het woman, in your stereotypical het relationship, it is understood that abuse happens because a person is evil and malevolent and mean and there can be no room for any other facts.

but what happens when you step back? and look at the whole?

that woman is looking, not at a narrow slice of a hypothetical situation with imaginary people. she is looking at her life, her real life, in all its complexities. she’s looking at the things that her partner does that endears him to her, or the history they have together, or the fact that he is working his ass off to keep her and the family fed, or the way he stays at a job that is killing him because they need the health insurance it offers, or the sweet things he does for the kids.

Or maybe none of that is true, maybe there really isn’t much positive in the relationship, but it’s fucking HERS.

And to have someone loudly, unhesitantly condemn that? and if she squeaks a single word in protest of that condemnation — or simply lets on to the complexity of the situation as a whole, the conflicted feelings she has about it? what do people do?

they call her brainwashed, battered wife syndrome, inexplicable. No one would have “abuse” happen and rationally choose to stay.

and maybe all this does is just solidify her devotion to him. or to silence. because it’s just been demonstrated to her, that no one else is on her side, either.

just the side of that imaginary hypothetical stereotypical person.

no place is really safe for her. the real, true being, her. everything encompassing all that she is, and does, and feels, and lives. no one accepts that. only the pieces of her that they like, that are convenient to them — that they can use for their purposes (proving to themselves a point about their own lives, or a stereotype about abuse victims as a group).

She is a slice of a person, a sliver of an experience that we the community can extract from her, to inspect and analyze, to hold up to make a point off of. She is just a piece, a section, a portion. Not a life, a living being, a breathing throbbing soul, a person with her own experience that is made of her own history and her own personality, that is completely and totally different from anyone elses.

But we have grown comfortable with this practice, taking that huge and complicated beautiful mess of a life and narrowing our focus in to one tiny spot in its landscape, and have entire conversations about this one little tree without ever one acknowledging the huge and intricate ecosystem in which and on which it survives. Whether that system is thriving or deprived and dying makes a big difference in what conclusions to draw about that tree, but we never want to acknowledge the rest of the expanses of that whole landscape, that whole picture, that whole being. That would complicate things.

To an extent, simplification is a tool that can be put to useful ends, but it is one of many, many tools in the chest, and we should caution ourselves about its drawbacks, about the costs that come with using it. Right now, we seem to be using it while pretending that there are no costs. And vast swathes of living breathing landscapes are scrubbed out of existence and we wonder why the tree starts dying.

***

There’s something else that I think is highly important to any healthy community, or movement, that slips through the cracks when we engage in this narrowing of focus, this eliding of — not just context, that’s not really the concept I’m going for here — but wholeness…

That is, in any conversation on any issue there is going to be a lot of pushing, and pulling, and tension, and conflict, and difficulty. It is going to result in strained patience, hot faces, teary eyes, and sore feelings. And these things need not always be. There is no reason to create them where they would not otherwise occur. The things, themselves, are not necessarily valuable in and of themselves. But they can be symptoms of healthy change.

What we need when we talk about issues affecting real lives is for the conversation to be bursting with a wealth of different focuses, different approaches, different goals, different methods.

We need people to be “reasonable” and to try to reconcile our ideals with the reality of the world. We need people to figure out how to implement these ideas we have, and how things might go wrong in doing so, and what issues might come up in doing so, and how we might address those things if they do.

We need people pushing back strongly against those who would strike out middle ground and forge compromise, reminding them of what they might forget in their focus on the achieving the possible. We need people who will cry out against injustices, no matter how it might offend those outside, and people who will take middle-grounders to task for the things their movement-programs fail to address.

We need people who will do diplomacy to people outside, who will try to introduce them to easy topics, try to wean them onto a diet of political awareness, try to frame things in a way that they will understand, try to find ways to convince them how this issue is relevant to them. We need people who will be kind and gentle, who are there with reassuring words to fall back on when they make a mistake, and positive reinforcement when they do something right.

We need people who are harsh and grounded and ready to make clear those same outsiders exactly the greusome realities they have a role in creating. We need people who are hardened and unsympathetic, who are credibly able to make an uncooperative outsider’s day quite unpleasant if they choose to engage in bigotries.

We need people who will explore the boundaries of the conversation, searching for new frontiers, pushing into places that are uncomfortable, unsettling.

We need people who know how to get shit done to keep everyone fed and clothed and sheltered and stimulated. We need people who know how to work the system, and we need people who know how to work around the system.

All of these things get lost when the conversation, instead, becomes focus on one tool in our toolbox. One very narrow method or process, one particular style or approach, one device, one instrument, one tool in the enormous toolchest of relationships or organizing or community building. When one style of speech is condemned, or one point of view is diminished, or one way of accomplishing something is held up as exemplary.

Because when you are looking at a cropped picture of something, it might look bad. It might look insufficient to reach its stated end goal, or it might look unpleasant in the absence of context.

But when you widen your view to include the entire scene, that act might change in connotation. It might not be perfect, and might not accomplish everything. But it serves a purpose that perhaps wasn’t being addressed. It fills a need that might have gone unfilled. It shapes a space in a slightly different way. And perhaps we couldn’t move forward, in the original space. Perhaps we were smacking up against the boundaries we had created before, and finding our needs growing all the while.

Maybe it takes a lot of different approaches to help shape our space the way it needs to be.

Maybe we never fully understand what we need, and constantly have to make adjustments, and find ways to accomplish a reshaping, to account for newly gained knowledge.

maybe we all serve different roles. and maybe we all need to realize that the role we fill cannot fill the needs of our entire community. that our role is very important, but at the same time, so are the other sorts of roles people fill that are different than ours. and that personally, we might not fully understand where they are coming from or how they go about things, but we must realize the unfortunate limits of our own individual imaginations and allow for the possibilities of the collective imagination.

of course, what we collectively imagine is subject to a lot of push and pull, teem and throb…

***

we need people who can write reasoned, objective analysis.

we need people who can write impassioned pleas, and compelling attempts to persuade.

we need people who can bring deeply-felt emotion, who can get across the importance of a situation, or the true effects something has on a living breathing life.

and we need people who can write from experience, who can tell personal stories, who can convey humanity.

***

august 15, 2010

scribbled on a notepad on my bedside table, in the dark

putting

things in stark terms

overusing as a device

people get distracted

i can be more

– generous? –

neutral in

explanation

to give greater number of people access to my analysis

then again, over-

reliance on “reason”

logic neutral objective etc.

shuts out many

marginalized people too

discussion approach

centering around preferences of dominant group not

needs of marginalized group

speaks to necessity of

many approaches

& space for multiple

& variant conversations

not all needs can

be served with one

approach

choosing just one

as the only “good” or

allowable approach

means explicitly

rejecting certain

people’s place in

any conversation.

***

I do feel highly uncomfortable with my own overreliance on stark, unforgiving terms.

I want people to give me room to breathe, room to work, in any interaction. Because I want to be able to learn something from it. That doesn’t mean that any wrongs are ignored, or immediately forgiven. It means that sometimes, the shape of the conversation changes, when the focus narrows on a specific part of  the interaction, when there is a whole wealth of material and opportunity to explore in the greater conversation.

I want to explore. I want to discover. I want to pursue a politics rooted in wholeness.

***

I want to be someone who recognizes and acknowledges the whole of a person.

We cannot live for so long as we are chopped up into conveniently-sized portions for the consumption of others.

***

I’m wondering about the way I interact withmy communities.

I’m thinking about the structure of internet activism and the incentives it creates for bad behavior, abuse, manipulation.

I’m thinking about the way that every group is, in some way, an enormous failure. The way disability organizing is overwhelmingly white, for instance.

No matter how radical any group is, they are limited. Humanity is limited. It can only understand things through lenses, and no lens can take in the whole of a scene at one time.

We are all limited by the lenses we use.

If we are looking through an anti-racist lens in the US (and I mainly mean the lens that white folk use),

we are probably eliding the structure of racial inequities in the world as a whole. We are applying the structure of the US racial system to our thoughts and actions elsewhere in the world — even when we are trying our hardest not to.

If we are looking through a disability-positive lens,

we are probably assuming certain things about society where we live that may not be true in societies across the world. How would disability activism change in an area where there are no modern streets to worry about curb cuts? How would we re-focus and  re-center the people affected? Would we be able to?

Every lens skews the view of the person looking through it. And we cannot see without those lenses.

I’m thinking about how even some of our most venerated leaders held considerable prejudice, and advocated for the “wrong” side of certain issues.

About how Obama seems to be personally uncomfortable with queerness, and is deporting great masses more people under his administration than

About how Gandhi wrote against dark-skinned people in South Africa in his early years there.

About how important it becomes to us to deny that there is any possibility Martin Luther King, Jr. might have personally disapproved of gay marriage, regardless of what he may have thought himself (point being, if he were shown to inarguably believe in the rights of gay folk too, we would clutch tightly to that — and that is indicative of something).

About how we fashion our leaders into idols. About how we strip them of their humanity, scrub them clean of any blemishes, cover them in white virgin cloth, and freeze them in stone, so that we can display them to the public as a point of righteous pride.

I am also thinking about the way these shining idols shape the way we view each other.

I’m thinking about how I would see a person, and expect them to be close to perfect. And when they failed on one thing, grow immensely disappointed with them and feel as if I have been betrayed. As if they were lying to me about their perfection. That they probably never claimed, but that I wrote in for them.

What good does this do me? To expect nothing but the best, find out that these human beings are human, and feel that I must disassociate myself with them to protect my own image (of myself)?

It doesn’t leave me with a lot of people to associate with, I’ll tell you.

***

Does it count as depression when you know you’re too emotionally tired to go any further, and you just want to go to bed now to avoid the mood down-swing you can feel coming, but when you look at the clock it’s only 4pm?

***

for a long time, I have been creeped out by a certain type of person in the blogosphere.

for a while now, I’ve been hating and fearing the times I know I’ve played that type.

it’s the person who is there for every fight. there for every drama.

the person who’s got the gossip on all the parties and can report on the game.

the person who has to take every drama and analyze it to death. has to give the play-by-play and offer commentary on every little move. where so-and-so went wrong here, said a Bad Word there, broke The Rules(TM) over there. where so-and-so followed The Rules(TM) well here and you all should observe so-and-so’s example.

the person who can always fit an incident into a convenient narrative mold, shove it in as tight as you can and pop! out comes the pre-shaped narrative. the person who can always find a way to create two clearly defined and opposite sides, and set up the argument in such a way that the Right Side and the Wrong Side are easy to deduce if you know The Rules(TM).

the person who hangs around like a vulture, waiting for someone to slip up, trip up, fuck up — so they can pounce, and pop them in the mold, and serve up the resulting conveniently-shaped thing for the public to devour.

consume.

the person who knows the right words to repeat, and the right people to suck up to.

the person who knows how to network. how to build a following.

the person whose interactions in the community always seem to come down to winning. being the best activist. the most perfectest. the best “ally.”

and it just feels weird because they sau all the right words along the way, but ultimately it feels like … they aren’t in it because they care about the issues they’re talking about. they’re talking about those issues so that they can be in it.

and seem to get so excited when something new erupts. because it’s not a clear sign that there is some pretty tough pain going on. it’s a clear sign that there’s a new drama to reputationally profit off of.

***

you know when this finally came to head for me?

that big fucking feministing blow-up. (which one, you ask, and i say exactly)

i regret ever getting involved.

i regret it deep down to my bones.

ever since it happened i’ve been withdrawing further and further, because i saw some ugly shit in that, and what did it result in? what good became of it?

i came to distrust a lot of people after that because they kind of… disappeared… after the drama was gone.

there were people who were glad to talk the drama, but weren’t there for the quiet moments when we were talking about something that couldn’t be played against someone else…

that was unsettling.

and i started examining exactly what was unsettling me

and over time i’ve come to realize – it’s my involvement in the first place.

the fact that i stood up and “called out” someone

the fact that i got into the realm of blaming individuals, shaming individuals for being *ist, and therefore Bad People who shouldn’t be listened to by the wider community because their reputation was tainted

that game is poison.

“calling out” and categorizing people by their perfection-in-my-area quotient and demanding that they repeat after me the Right Words they were supposed to say, that they follow The Rules(TM) to the letter or have their misstep (or conscious refusal to play the game) used against them, used as examples of their bad faith.

it’s poison.

it kills communities.

it eats them from the inside out.

***

august 16, 2010

I don’t know if this place has anything for me anymore.

If I have anything for it.

I don’t know if I have anything left to say.

and I’m tired of fighting.

and I think I need to just let go.

let go of my idea of community, of relationships.

just stand on my box on the street corner, and speak.

and once the words have left my mouth, let them go.

let the world do with them what they want.

by amandaw on Saturday, July 31, 2010 at 2:35 pm 9 Comments
Tags : abuse, community, control, culture, identity, metablogging, personal, power, relationships, roles, social justice

Children are objects of their parents’ possession, and society has an interest in enforcing this.

We need look no further than the story of this sixteen-year-old young man, who is facing a flurry of attention after filing a lawsuit against his mother for hacking his Facebook account. He also requested a no-contact order on her.

It appears that the mother, at best, took advantage of her son having failed to log out and clear all cookies and personal history from his computer every time he leaves it for half a moment, and at best, straight-up hacked his account — read some things she didn’t like, and responded by posting things all over his page in an attempt to embarrass him and then going to the length of changing his passwords on his Facebook account and his email so that he couldn’t do any damage control after he found out about it.

She thinks that these actions constitute a “conversation” with her son.

The son lives with his grandmother. Someone, somewhere (I can’t find an attribution) claims that he and his mother had a “great relationship,” a claim that sounds suspiciously like the refrain that commonly comes from assaulters and abusers, from cheaters and absent parents and partners. They truly have no idea that something is deeply, thoroughly wrong with the relationship, and the signs of the second person in it — the object — protesting against that wrongness are lost on them.

Like, you know, the fact that her son does not live with her and prefers not to have any contact with her at all.

The mother is living it up in the face of all this attention. She gets to assert her ownership of her near-adult son and know that a great many will rally to her defense in response.

New plans on fighting the charges, as she believes she was fully within her legal rights as a parent to monitor her son’s online behavior.

“Oh yeah, I’m going to fight it. If I have to go even higher up, I’m going to. I’m not gonna let this rest. I think this could be a precedent-setting moment for parents,” she told KATV-TV. [source]

Denise New says she plans to fight the charges saying if the suit is successful it will be “open season” on all vigilant parents who seek to keep their children in line. [source]

“You’re within your legal rights to monitor your child and to have a conversation with your child on Facebook whether it’s his account, or your account or whoever’s account.” [source]

“If I’m found guilty on this it is going to be open season” on parents, New said Wednesday.

“You’re within your legal rights to monitor your child and to have a conversation with your child on Facebook whether it’s his account, or your account or whoever’s account,” she told KATV. [source]

“The things he was posting in Facebook would make any decent parent’s eyes pop out and his jaw drop,” Denise New said. “He had been warned before about things he had been posting.” [source]

Denise New acknowledged changing both passwords to keep her son from getting access to his Facebook page. She denied hacking into the account.

“He left it logged in on my computer,” she said. “It’s not like I stole his laptop.” [source]

Readers will note a common refrain in many of the non-strictly-news sources above (and found here): “What ever happened to de-friending?” As though this is a matter of a son allowing his mother to have viewing access to his page through her own account as a friend. The son may never have allowed his mother to have an inkling that he had a Facebook account: she still forced her way into it. Not in view of it, in control of it. This doesn’t have anyfuckingthing to do with who you friend and who you don’t.

Of course, most sites focus on the potential implications for parents’ rights, and there’s a good reason for that: our society cannot deal with the idea of children as full human beings with ownership of their own selves. It is firmly entrenched in our social consciousness that children are objects, possessions, things lacking full personhood, desire, decisionmaking ability, agency.

Much like women used to be (and are still, to some extent) considered, hm? Objects for the benefit of the full beings who own them. Women would be passed along from fathers to husbands, traded for physical and monetary property, no distinction between the two things in that transaction. Not identically, but similarly, children are considered objects owned by their parents much the same as wives were objects owned by their husbands. (I expect that mothers reading will feel this a little more intuitively than fathers might — knowing that oneself might be on the object end of that transaction can produce a different reaction, sometimes.)

It is interesting that the immediate reaction to this story on the part of adults, especially adults who have children, is to consider the parent’s plight in this story, completely neglecting the concerns of the child. And it reminds me how (feminist) abled women immediately rush to think about the plight of the caretaker in any story of caretaker abuse of PWD, completely neglecting the concerns of the person being given the care, as though they don’t even exist. As though they are objects: things that cannot be affected themselves, that can only affect the full persons in their non-lives.

It is telling, really, who we consider to be persons worthy of consideration, whose problems we consider to be important and worth solving — and who we consider to be persons completely ignorable, whose problems aren’t worth consideration and don’t particularly need any attention, much less any attempt at solving. (In fact, the solution to their problems might interfere with the solutions to the important problems — so they should be crushed if possible.)

This is what we are. People read this story of obvious, clear violation of boundaries, and think immediately on their own right to violate others’ boundaries: or else they resort immediately to blaming the victim for this clear violation of their own boundaries. The reaction more comment from non-parent adults.

How ridiculous, right? That a boy would assert his right to his own fucking life without his abuser’s interference. Especially when this parent doesn’t even have any fucking custodial rights! And we still rush to her defense. How poisoned are we?

by amandaw on Saturday, April 10, 2010 at 1:38 pm 3 Comments
Tags : abuse, assholes, control, culture, defaulting, disclosure, fuck that, justice, power, privilege, problematic attitudes, relationships, roles, scary, self-determination, shaming, social treatment, the media, things people say, this all sounds awfully familiar

Feminism objectifies women

You’ve heard the term “choice feminism” right? Usually used derisively by a person who is arguing: Just because a woman makes a choice does not make it a feminist choice, we have to be able to examine issues on a systemic rather than individual level, some choices that individual feels are good for them are actually going to be bad for the group as a whole and even bad for that individual when systemic issues are taken into consideration.

Here’s what annoys me about this argument. It always comes from the perspective of a white, cisgendered, currently nondisabled, middle-to-upper-class, heteronormative, and otherwise socially privileged person.

That doesn’t mean that it’s that kind of person saying it: it means that the very idea comes from a very specific perspective, in response to a very specific situation.

And not all of us are in that same situation.

The assumption, when this person says “we have to be able to make some sort of systemic analysis and that will mean some choices have to be wrong” they are almost always assuming some specific things.

* Women have been historically locked in their homes tending their houses and families, and larger society pushes against women’s ability to participate in the workforce, and women should participate in the workforce at the highest level possible.

* Women are oversexualized, and that sexualization takes specific forms, such as high heels, lipstick, makeup, dresses.

* Women are stereotyped as demure and submissive, soft and giving, caring and intuitive.

* Women are forced into roles as family carers, encouraged to have as many children as possible and to be the primary carer to those children, stereotyped as having special natural ability to raise children.

That’s just a few.

Here’s the thing. Everything I just said above about “women”? Isn’t true for women. Rather, it is true for white women. Or cisgendered women. Or nondisabled women. It is not true for women as a class.

Yet we continually operate on the assumption that it is!

But ask some other women, sometime, what their experience has been. Many poor and lower-class women, for example, would gladly tell you that they have never had a whiff of an option to stay home with their children — they’ve been out there washing the rich women’s drawers, or sewing them in the first place, so that they can afford dinner for their family a few days out of the week. Ask a black woman about being a nanny and wet nurse. Ask both of those women, and a few mentally or physically disabled women, about when they had their children taken away from them or weren’t allowed to spend any time with them at all (apart from the time they spent cleaning up the messes of the children of those rich/white/nondisabled women they worked for).

Ask a little black or brown girl in some poor neighborhoods about being expected to be virginal (a concept that depends on whiteness from the very beginning) until her wedding day. She’ll probably laugh at you. She’s been continually harassed, abused and assaulted since age six. She’s portrayed in larger culture as an unsexual unwoman and yet every man who crosses her path sees her as a potent sexual opportunity.

Ask the little girl with developmental disabilities about sex sometime, too. No one ever sees fit to give her any information on the subject. They fight to have her sterilized, or even be forced with serious drugs and surgical interventions to stay in a prepubescent state for the rest of her life, so that no one will ever have to deal with the messy proposition of a menstruating or pregnant r*t*rd girl. And if she does get pregnant, that baby had better be aborted immediately, because she could never, ever be anything but an utter failure of a parent. Sterilization is proposed precisely so that she will never get pregnant even if she is sexually assaulted by carers — precisely because everyone knows that she will be.

Ask the visibly disabled woman about being expected to dress up in skirts and high-heeled shoes. Everybody around her will wince at the thought of her in form-fitting, skin-showing clothing. Because, you know, “women” are oversexualized in that way. Ask her about those super-special parenting powers she supposedly has. Everybody around her will bristle at the thought of her having primary responsibility over a child. Because, you know, “women” are stereotyped as having those super-special powers.

All of these girls and women live very different lives as girls and women. The fact that they are marginalized as girls and women is one thing they share in common. But the ways in which they are marginalized are different!

A white woman is marginalized in a different way than a Latina woman is. And a Latina woman is marginalized in a different way than an indigenous woman! A nondisabled woman is marginalized in a different way than a paraplegic woman is… and a paraplegic woman is marginalized in a different way than a bipolar woman is. An upper-middle-class woman in urban New York is marginalized in a different way than a poor woman in urban New York — and a poor woman in New York is marginalized in a different way than a poor woman in Indiana.

There are different mechanisms of marginalization for different types of people — and the greater your difference from the presumed default person, the more different your type of marginalization looks than the privileged-other-than-gender woman.

And that means that what affects you, how it affects you, what issues are important to you, what is good for you and what is bad for you, is different for different sorts of people.

So we cannot, cannot assume, if we agree that “choice feminism” is misguided (and indeed, I believe that straw-ideology would be misguided — well, surely many people think that way, but that is not usually the argument that is being put forth in these discussions), that high heels, lipstick, being submissive, foregoing paid work to raise children, etc. etc. are clearly problematic under a systemic feminist analysis. Because they might be clearly problematic for one set of women — but they are not clearly problematic for the set of all women.

Actually, sensible shoes and baggy desexualized clothing might be clearly problematic for a different set of women who have been historically deprived of their right to any sexuality. Actually, full-time participation in the paid workforce might be clearly problematic for a different set of women who have already been working outside the home for centuries and have historically been denied the right to raise their own children. Actually, being aggressive and dominating or even merely appearing assertive and self-confident might be clearly problematic for a different set of women who are culturally typed as bossy, loud, demanding and unyielding and rarely read as anything but.

Given all of this, I am distrustful of anyone who argues against “choice feminism” or the idea that “any choice is a good choice for that person” because that is not the point. When people protest as you judge their choices against your standards, they are not claiming that no choice could ever be problematic. They are protesting because you are applying the standard of your particular experience against their very different experience. They are protesting because you are assuming that your experience is universal. They are protesting because you are invalidating their own experience, their own feelings and thoughts and desires, in the process. They are protesting because you are objectifying them. And it feels pretty shitty to be objectified.

(Cross-posted at FWD/Forward.)

by amandaw on Sunday, February 28, 2010 at 9:00 am 3 Comments
Tags : ability, ableism, abuse, choice feminism, class, cultural lens, culture, defaulting, disability, diversity, erasing, essential concepts, family, feminism, fuck that, head asplode, i thought you were supposed to be my ally, invisibility, justice, normal is only one option, power, privilege, privilege-check, problematic attitudes, race, roles, self-determination, sex, sexuality, shaming, social construction, social justice

Gender, health, and societal obligation

Kate Harding, writing at Broadsheet:

“If you ask us,” say Glamour editor Cindi Leive and Arianna Huffington, “the next feminist issue is sleep.” Personally, I never would have thought to ask those two what the next feminist issue is, but they make a pretty good case. “Americans are increasingly sleep-deprived, and the sleepiest people are, you guessed it, women. Single working women and working moms with young kids are especially drowsy: They tend to clock in an hour and a half shy of the roughly 7.5-hour minimum the human body needs to function happily and healthfully.” The negative effects of chronic sleep deprivation are well-documented, but that doesn’t inspire enough people to prioritize rest, and women often end up in a vicious cycle of sacrificing sleep in order to do extra work and make sure their domestic duties are fulfilled, causing all of the above to suffer. “Work decisions, relationship challenges, any life situation that requires you to know your own mind — they all require the judgment, problem-solving and creativity that only a rested brain is capable of and are all handled best when you bring to them the creativity and judgment that are enhanced by sleep.”

So many obligations are heaped on the shoulders of women, and it is pretty much impossible to fulfill all of them even if you completely neglect your own needs. Of course, trying to tend to your own needs means even fewer of those obligations fulfilled, and there are cries and admonishment of selfishness and failure and responsibility to others waiting for you should you assert your right to self-care, because by asserting the right to take time and energy exclusively for yourself, you are stealing time and energy that belongs to others.

Sleep is a contested act in American society (perhaps in others too, but I can only speak to the US): getting little of it becomes a point of pride; getting a lot of it is a symbol of laziness, selfishness, sloth, dirtiness, carelessness. People are expected to perform amazing tasks on as little sleep as possible, which is completely counterintuitive, because most people are going to perform worse with insufficient sleep — consider it a generalized manifestation of the supercrip phenomenon: exactly the people who are least supported/enabled to do something are the ones who are expected to do it better than normal people.

Better sleep would surely benefit many of us, but why?

According to Leive and Huffington, the main benefits realized are in service of others; the main beneficiaries are the people around you. Or, if you see the benefits, they are benefits that stem from an obligation to others, any self-benefit remaining firmly subordinate to the “greater good” of one’s family, colleagues and community members.

We should be well familiar with the concept of women as public property. Women’s bodies, women’s time, women’s possessions, women’s decisionmaking capacity, women’s self-determination — just about anything a woman possesses, though she doesn’t really possess. Rather, she is allowed use of something that is under her care but not her ownership: it belongs instead to the people around her.

Feminists are familiar with the idea that our society considers female reproductive organs to be public property. A woman’s vagina should be available for all comers (men), and simultaneously be unavailable so as not to waste its value to its eventual sole owner (a man). A woman’s uterus is to be used for the good of the human species/civilized society: the right kind of women are to reproduce as much as possible, so that their kind remain the dominant group in both pure numbers and in overall power. (On the other hand, the other kinds of women are called upon to perform the rough, menial work necessary to uphold modern society, while not polluting the human species by reproducing themselves.)

But honestly, public ownership of women extends so much further than their reproductive systems.

No woman is allowed to assume ownership of any part her physical self, her time or purpose: it is still an “indulgence” for a woman to eat anything more substantial than a leaf of lettuce, still “sinful” to enjoy less than 100 calories of overprocessed puddings and crackers. It is still somehow selfish to take a long bath or to sit and rest for an hour’s time, still slothful to refrain from moving, working, pushing, rushing every single moment of every day.

Women’s work, in general, is under-valued and un(der)paid — and it is uncompensated precisely because women’s time, their energy, their effort, do not actually belong to the women themselves, but rather to the rest of the world. It is theirs to use whenever, however, and however much they wish, and isn’t it ridiculous to suggest they should pay for the use of something that belongs to them in the first place?

This is all part and parcel of living in a patriarchy, a predictable result when society relies upon a person’s gender to determine hir position in society, the things sie will do, the roles sie will play, the direction hir life will take. But gender is not the only variant in play here. In fact, I believe that gender is actually secondary here to another factor — it is merely one avenue of manifestation for our cultural construction of health.

Surely you have heard of the theory that gender is not an inherent trait, but a performance. This theory is definitely not without flaws, but I bring it up in hopes that it provides a familiar framework for a discussion on the social construction of health.

Health, you see, is not merely an inherent trait. Health, instead, emcompasses a variety of factors, including a person’s intrinsic qualities but also the environment in which they operate and their everyday behaviors.

Health is not just what a person is. Health is also what a person does. And what drives a person to do something is not wholly internal, but rather is largely influenced by external factors.

Gender, for instance, is both an internal sense of being and something we do for other people, something we do because we want other people to think about us, react to us, in certain ways. And the things we do, and the expected reactions to them, are different depending on which culture we are operating in — dependent on where we live, on our ethnicity, on our class background, on any number of other things. What it means to wear certain types of clothing is different in different cultures. What it means to speak a certain way is different in different cultures. And so on.

This framework is — I hope — useful for understanding what health actually is.

The form “health” takes is different depending on the expectations of the culture you live in.

The ultimate importance of that so-defined “health” is different depending on the expectations of the culture you live in.

The role “health” plays in the culture, what “health” means in that culture, the way the people of that culture interact or engage with that idea of “health,” are different depending on the expectations of the culture you live in.

What you do to achieve “health” is different depending on the expectations of the culture you live in.

How your health affects your position in life, your economic opportunities, the support that is offered for you to live the kind of life you desire, are all different depending on the expectations of the culture you live in.

(And yes, all of this is just as true in a culture that makes use of the scientific method and sees itself as cool and rational. What is investigated, and how, and how the results are interpreted, and what lessons are drawn from those results, and how those lessons are applied in everyday life — all these things must grow out of the culture they happen in! )

Health, then, is not merely a personal state, but rather a cultural fulfillment. Health (of whatever kind) is expected of you, expected by the people around you. Your health is not your own, but instead belongs to your family, your community and your wider culture. You must achieve and maintain (whatever kind of) health, not because it benefits you personally, but because you will have deeply failed your fellow members of society if you don’t.

And this is what underlies the problematic aspect of Leive and Huffington’s statements. They are not suggesting that the sleep deficit for women is a problem because the woman herself feels fatigue or cognitive dysfunction. They are suggesting that the sleep deficit for women is a problem because the woman cannot fulfill the expectations of health — and the performance of duties that rely on that state of health — that society has for her. They are suggesting that the sleep deficit for women is a problem because then that woman personally fails her family, community and country.

Here, then, her lack of sleep lays bare her duty to society based on particular qualities she holds. But the disparity between her duty and her male peer’s duty would not exist if all of us did not have a duty to society to achieve and maintain a certain kind of health.

And Leive and Huffington, purporting to be advocating on women’s behalf, do nothing but reinforce the same system that screws women disproportionately when they center a woman’s obligations to the people around her over the personal experience of the woman herself.

And here, I hope, feminists will understand what disability activists mean when we talk about the supposed obligation of mentally ill people to submit to (certain kinds of) treatment for the sake of the rest of society — or what fat acceptance activists mean when we talk about the supposed obligation of all people to be as thin as possible for the sake of the rest of society — and so on.

Eating “healthy” (as determined by mainstream cultural wisdom, largely controlled by wealthy white temporarily-abled folk) is not done solely for oneself. Neither is “exercise” (of course, what counts as physical-activity-that-improves-health is controlled by the same people who control what counts as food-that-improves-health). Participation in the paid workforce is not done solely for oneself — we are, in part, fulfilling the obligation of “responsibility” (which is a component of the health performance, because when health is lacking, the ability to work declines — so work, then, is a demonstration that you are fulfilling your health obligation).

When a person neglects to fill a health-related obligation, there is someone there to remind them of the cost to the rest of society. We’ve all heard figures on the cost of obesity, the cost of heart problems, the cost of low employment rates, the cost of suboptimal nutrition, the cost of insufficient sexual education, the cost of lost sleep… wait, that sounds familiar. Anyway, the cost might be in dollar figures, might be in time lost, might be in persons participating in x activity, or might be more intangible: work decisions, relationship challenges, judgment, problem-solving, creativity… wait a second, didn’t we just hear that? Oh yeah.

And that’s what’s wrong with this angle. Ladies, you are hurting your families! You are failing your communities! You’re dragging all of society down with you! When all you have to do is get an extra hour of sleep — seriously, how selfish are you, staying up to get the dishes clean after your kids have gone to bed so that they’ll have clean bowls to eat cereal out of in the morning?

Except that the entire reason women are getting less sleep than they need is because they’re busy fulfilling their obligations to the rest of the world. The entire reason women are getting less sleep than they need is because they’re required to be well enough to handle multiple shifts, every single day, for their entire adult lives. The entire reason women are getting less sleep than they need is because they’re required to get up at stupid o’clock every morning to handle all the things they’re required to do before going to work (including the obligations to project an image of “health” — to look and smell fresh and clean, to be sufficiently hair-free, to wear attractive clothing, to possibly spend time putting on a face full of makeup and making her hair look presentable — all which are wrapped up in appearing healthy to the people around you), and when they get home from work they still have to do the laundry and make the dinner and wash the dishes and pick up the floor and wipe down the kitchen and bathroom counters and possibly wrangle kids or partners all the while –

– and then they are getting chided by self-proclaimed women’s advocates because they spend too much time doing things for other people, and not enough time doing things for oneself… for… other people…

And it’s impossible to separate the demands of womanhood from the demands of ability. It’s difficult to differentiate the hierarchy of value imposed on people of different genders from the hierarchy of value imposed on people of differing abilities.

I’m sure you get, by now, how women get completely and utterly screwed in this situation. But I invite you to imagine, then, how disabled people get completely and utterly screwed by this situation — and then I invite you to imagine how a system that did not value people differently due to their differing abilities would also remove a lot of the pressure that is currently dumped on women.

A system of equal access, opportunity, value, for people of all types of abilities, would be radically better for people currently oppressed under this gender-based system.

And when you reinforce the ability-based system of oppression, you make things worse for the women living under it.

… just sayin’.

(Cross-posted at FWD/Forward.)

http://www.salon.com/mwt/broadsheet/feature/2010/01/04/sleep_challenge/index.html
by amandaw on Thursday, February 4, 2010 at 8:00 pm 2 Comments
Tags : body image, chronic illness, community, control, culture, disability, family, feminism, health, privilege, social construction

Do you REALLY trust women?

For the purposes of this post, I would like to remind everyone that the range of disability includes people who are mentally ill, paralyzed, Blind, Deaf, permanently injured, autistic, physically disfigured, with compromised immune systems or disordered speech or chronic pain or cognitive impairments, and many, many others. Disabilities may be fatal or not, may be degenerative or not, may be apparent or not. Being painful, fatal, stigmatized, or poorly understood does not mean that life is not worth living, and I will not tolerate any attempts to enforce a hierarchy of disability; there is no category of Especially Bad Disability that destroys any chance of worthy life.

A blue-purple sunburst in the background, white letters reading "TRUST WOMEN: Blog for Choice Day 2010"

Blog for Choice Day 2010

Have you ever participated in the stigmatizing of pregnncy, childbirth and childrearing when the parent, child, or both have, or could have or obtain, disabilities?

Have you ever participated in the cultural narratives that say:

  • Older women should not have children because their children are more likely to have a disability
  • Women with disabilities should avoid having children because their children might also have a disability, and it would be wrong, unjust and cruel to give birth to a child that is not in perfect health
  • Women with disabilities should avoid having children because only temporarily-abled women can properly parent a child, or being a mother with a disability would somehow deprive the child of necessary experiences or put a burden on the child
  • Women with disabilities should avoid having children because they are more likely to be poor and need public assistance, and their children would also be more likely to use public assistance in the future, resulting in a drain on temporarily-abled taxpayers
  • Women with disabilities would be selfish to have children, and to do so would contribute to environmental destruction, economic decline, and even degradation of the human species, and they and their children would be less valuable members of society because of their lack of perfect health
  • It would be a tragedy to have a disabled child, disabled children are less desirable than temporarily-abled children
  • Life with a disability is inherently worse than life without one; life without a disability is the baseline by which all life should be measured, so of course to have a disability would be a negative and would make a person’s life worse
  • Disabled children are a burden on their temporarily abled parents, more so than any other child would be, and this is because of the child’s disability rather than because of the lack of support and affirmation throughout all levels of society for PWD and their loved ones
  • Of course it is more desirable for a child to be perfectly healthy than to have some sort of medical imperfection, and those medical imperfections are a big stress and hassle on the temporarily abled people around the child, and there is something wrong with the child for failing to meet an impossible standard of perfection
  • Health and ability are objective concepts and our current cultural wisdom on them are completely right and the medical industry that puts them forth is infallible; our ideas about health and ability are the only right way to look at things and can be universally applied
  • To violate those cultural ideas means that you are inherently flawed
  • The answer to all of this is to go to excessive lengths to avoid ever having, or being around someone who has, health problems, up to and including letting the least healthy die off or be terminated before they can live at all

You know what? I’ll bet you’ve all done it. Even the most radical disability activist has participated in some of these cultural tropes at some point in their lives.

But I’ll bet the vast majority of people “blogging for choice” would never think of disability as related to “choice” issues, and if they did, it would be for the right of temporarily-abled higher-class white Western women to terminate a pregnancy that has a more-than-minute chance of resulting in a less-than-perfectly-healthy child.

This is why the “choice” framework fails. It fails all of us, but it particularly fails those of us who fail to meet society’s idea of the optimal person: the pale, thin, beautiful, and financially comfortable picture of perfect health. The person who never relies on others (no!), is “self-sufficient,” and isn’t likely to end up a burden on the important people.

The rest of us can “choose” to stop existing.

Do you really trust women? Or are you perfectly willing to override their choices if you feel they threaten your comfortable position in society?

And you expect me to think you’re any better for my rights and needs than pro-lifers, why?

(Cross-posted at FWD/Forward.)

by amandaw on Friday, January 22, 2010 at 7:43 pm 3 Comments
Tags : ableism, choice feminism, class, cultural lens, culture, disability, feminism, health policing, justice, language, mental illness, neurodiversity, normal is only one option, politics, pop culture, pregnancy, privilege, privilege-check, problematic attitudes, reproductive, self-determination, shaming, social justice, social treatment, speak up, the left, the right

Why I don’t think it’s funny to use Limbaugh’s drug abuse as a punchline.

Short background: Rush Limbaugh (link goes to Wikipedia article) is a US conservative radio talk show host who has risen to prominence in the US by inciting “controversy” after “controversy” with hateful rhetoric. He also went through an ordeal some time back for addiction to prescription painkillers, an incident that the US left likes to use against him. Recently he was rushed to the hospital again, which has spurred a new round of derision from US liberals.

Rush Limbaugh isn’t exactly a sympathetic character. His politics are vile and he makes a career out of escalating white male resentment into white male supremacy. And that causes real harm to real people who don’t meet the requirements to be part of Limbaugh’s He-Man Woman-Haterz Club.

How did he end up abusing prescription painkillers? I don’t know. Was he taking them for legitimate pain due to injury, surgery or a medical condition, and the usage got out of hand? Was he consciously using it as a recreational drug? I have to say I am still somewhat bitter about people who use the stuff I need to be able to get on with my daily life as a quick and easy “high,” ultimately making it harder to access needed medication. (But that is argument from emotion, mostly; I would posit that the real problem is a medical field and larger culture which does not take seriously the needs and concerns of chronic pain patients and is eager to punish people who step outside accepted boundaries.)

But even if he was just out for a high, I still feel unease when I see people use that angle to criticize him.

Because, here’s the thing… the same narrative that you are using to condemn this despicable figure is the narrative that is used to condemn me.

You are feeding, growing, reinforcing the same narrative that codes me as an abuser, that makes me out to be a good-for-nothing low-life, that makes it difficult for me to access the medication I need to be able to live my normal daily life.

When you laugh, joke, or rant about Limbaugh’s abuse of narcotics, you are lifting a page from the book of people who would call me a malingerer and interpret my behavior (frustration at barriers to access, agitation and self-advocacy to try to gain access) as signs of addiction. People who would, in the same breath, chastise me for “making it harder for the real sufferers.” (See why my bitterness about recreational use isn’t actually serving the right purpose, in the end?)

Maybe you don’t really think this way. But maybe the people laughing at your joke do.

And maybe, you just made them feel a little bit safer in their scaremongering about “addiction” and deliberate attempts to make life harder for us.

Scoffing at Limbaugh’s hypocrisy is one thing — but when your scoffing takes the form of a very common, quite harmful cultural prejudice — even when you don’t mean it to — it has real effects on real people’s lives. Sort of like that casual incitement that we hate Limbaugh for.

(Cross-posted at FWD/Forward.)

by amandaw on Thursday, January 7, 2010 at 6:00 am 2 Comments
Tags : ableism, abuse, addiction vs dependence, assholes, chronic pain, color me unsurprised, control, culture, disability, drugs, fuck that, health policing, i thought you were supposed to be my ally, medications, myths and misconceptions, pain, pain management, politics, privilege, problematic attitudes, the left, the right, things people say, this all sounds awfully familiar, treatment, vicodin

Creative diversity

quadmoniker at PostBourgie, “Hurting for Female Directors” (emphasis mine):

His answer was that he simply hired the best writers, whether that led to any sort of fair representation from women or non-whites. What he didn’t realize, of course, was that his definition of ”best” probably excluded, intentionally or not, all but white males.

He added that he didn’t want to sit around and count quotas because he felt that was condescending. But it’s not just about parity; making sure his organization was more representative was about realizing there are varied points of view that his history as a white male might prevent him from immediately understanding. When you’re talking about writers good enough to get an assignment from Harper’s, there isn’t just one best. After a certain level of quality, distinctions from one writer to another become a matter of taste, and this particular editor was showing his bias toward white males. Pulling in other perspectives would enrich Harper’s voice.

[...] I’m not going to say that [The Hurt Locker's different emphases] was due to Bigelow’s special woman-sense or anything, because we don’t know why she was able to make it so good. That’s kind of the point. The excellence of the movie speaks to Dargis’s point and the problem with Harper’s at once. If we leave out half the population from movie-making, we’re leaving out half the perspectives that might be able to bring something new to the table. The major studios would be better off if they brought it, because I’d love to see more movies like The Hurt Locker.

The last point in particular makes a lot of sense to me: some people would assume that, well, when it comes to imagining new things and taking things from new perspectives, white men can do it too — that white men are capable of providing any perspective or creative direction that humanity could possibly provide — and therefore there is no need to necessarily seek out a diverse creative class, because there is nothing a Muslimah or gay Filipino could bring that a white male couldn’t, and it’s an insult to white men to imply that they do not hold the entire world in their mind’s hands.

But they don’t, because no human being is capable of tapping into the entire universe of perspectives available. We all see the world through unique, specialized lenses that were formed and shaped by our experiences as the person we are. The place we grew up in, the family that raised us, the way the world treated us, the distinct qualities of the culture we are part of, the choices we make as adults as far as the direction of our lives, our careers, our relationships, our hobbies and passions. All of these things change the shape of our particular lens in their own unique way, and we all have a unique combination of these things which forms our own unique perspective of the world.

But those lenses have limits, they necessarily have limits, and we do not always even know what those limits are. Those factors we share with others will create a lens shape quite similar to their own, and when we are surrounded by like people we might often begin to believe that our shared lens is not a matter of our shared experience, but rather a matter of universality.

This is what leads us to believe that there is nothing the white male cannot achieve, cannot bring to the creative table: his experience is shared by so many, and especially shared by so many in power, that he, and we, might begin to believe that it is not a particularly-shaped lens anymore, but rather no lens at all.  And when we believe that he has no lens at all, what benefit could there be to paying attention and inviting participation from people who do have differently-shaped lenses? No creative benefit, certainly, because there is no difference between what those different perspectives see and what the white male could see if he felt like trying. Because he can see all.

And so we wind up where we are: it is an insult to creativity itself to suggest that it is worthwhile to drink in a diversity of perspective, and it becomes not a matter of improving the depth and quality of creative offerings, but rather a matter of personal benefit to the creators.

And we can see where a white male might prickle when confronted with a person who appears to be suggesting that he does not deserve to sit on his side of the conference table, that someone else who can do no more than he could do has some greater worthiness of sitting where he does based on factors outside hir creative potential, and that he should actually willingly give up his seat to make room for hir. It becomes a personal affront, rather than a pressure to improve the greater craft. And, in fact, might become an affront to the quality and depth of his craft, to specifically invite participation from people who bring with them one perspective, but only one — while he brings all.

So he will invite only those different people whom he favors for personal benefit. And he will continue to scoff at the suggestion that diversity is wealth.

How it might be changed? I don’t know. But one place to start is to make everyone aware that they can only see the world through their own personal lens, and that their lens has borders, limits, boundaries. That no one can approach the world without a lens, and that every lens is malleable, not set, not infinite, but formed in the first place by one’s personal experiences.

It’s going to take some time.

by amandaw on Sunday, December 27, 2009 at 12:21 pm 2 Comments
Tags : art, class, cultural lens, culture, defaulting, diversity, essential concepts, feminism, lgbtq, myths and misconceptions, neurodiversity, normal is only one option, pop culture, power, problematic attitudes, race, social treatment, the media

Why am I so damn mean?

(Optional background: my previous post and this comment to it.)

Yeah. I can be. I get angry.

I never used to. Ask my best friend. He’ll tell you. I was an appeaser. I was someone who was always sweet, always accommodating, always ready to be the mediator in a conflict, trying to reason with both sides, trying to placate the opposite party, making sure I never, ever said anything rudely, shortly, bruskly, or in any way that might put off the other party.

I still do that sometimes. When I have the time, energy and inclination.

But I don’t have time or energy anymore. Period. I have twenty things to do every day and only enough spoons for four of them. And that’s the basics: shower, prepare food, work (oh God, work), feed the cats, pay the bills, get ready for bed.

I participate in this community to varying extents at different times, depending on my time, energy and inclination. Sometimes I spend “spoons” here when I should be spending them watching hockey with my husband, or getting that extra half hour of sleep so I won’t fall over at work tomorrow. Sometimes I just have spare time and this is where I choose to spend it.

I feel like I can learn something here and also teach something here. I can do something. Make something happen. Be effective. Even if I only affect three people. Three is more than I would affect watching daytime court TV shows.

I don’t have much to spend here. I never do. What I want to be able to do is spend time researching, considering, organizing, compiling, refining, presenting. I want to be able to do more neutral-tone, resourced, annotated type posts.

I want to be able to profile the CCA. To explain what its goals are and why it is needed. To explain what is happening with it (currently, it’s dead because the current session of Congress is almost over) and what we can do to move it forward (right now, the first thing we can do is raise awareness of it so that more people can push for it because it will continue to go nowhere if the only grassroots support it has is from the likes of ADAPT).

Right now? I do not have the energy for that. Or the time. No matter how much inclination I have.

In the meantime, I watch the way things go in this community that I am a part of. And sometimes, the way things go makes me angry, as I watch it and it continues, over and over, to follow the same patterns, even as people raise their voice and point out the problems — and sometimes get shouted down for it — even as people demonstrate how it might go differently — and are summarily ignored by the people who hold the power in this community — and basically consigned to their corner, where they will continue to do the hard work they are dedicated to (and sometimes burn out because there is so much to be done and so little support) while nobody knows about it, because of a combination of a) the people with the power/audience don’t see fit to tell anyone or direct anyone their way or hell, maybe pick up and help out with some of that workload themselves? and b) the audience themselves don’t have the inclination to seek out the cornered-folks themselves, if they even have the inkling that they exist (because nobody is omniscient).

And you know what? That does make me angry.

So maybe I profile the CCA. And people who care about disability already learn about it (if they didn’t already know). And, because it isn’t “a women’s issue,” or because it doesn’t affect them directly so they don’t quite feel the same urgency, or because the culture is such that non-abled priorities are devalued so it ends up so far down the list of things to get to that it will never get gotten-to … feminist bloggers don’t say anything about it.

And … ?

So I get angry, and I wish that those bigger feminist bloggers would pick up on it, because it is a women’s issue, it does affect a great many people quite seriously, and it is something that they could make a serious difference with if they were to pick up on it, because it quite desparately needs a wider base of support.

And maybe I go the plaintive, appeasing, email-or-post-with-a-”Please-will-you-address-this?”-plea. Because that would be less offensive. (More effective? I don’t think so. I don’t think either way is more effective than the other, in the end: maybe you get people angry at you when you show anger with them, but maybe you’re also quite likely to be completely overlooked if you don’t get someone’s attention — because the whole problem is that they aren’t paying attention to you as you’re doing things the “right” way!)

Or maybe, it is an injustice that this issue ends up ignored by abled-feminist leaders, and it is legitimate to be angry about that, and it is legitimate to call them out on it.

Maybe, they didn’t know about it. That’s just how life goes. But maybe, the reason they don’t know about it is because of the systemic devaluation of non-dominant priorities. Maybe, the reason they don’t know about it is because they are continuing to — sometimes unconsciously, sometimes consciously — value their concerns over the concerns of people not like them. And passing over articles that detail issues that profoundly affect women because they don’t affect women like them. Don’t kid yourself and say that’s not why: they didn’t sit there and think to themselves while curling their moustaches, “Ha ha! These women are not like me, so they can go jump in a river for all I care! Stupak is more important!” But they just didn’t see the relevance — because our culture devalues disabled concerns!

That is what I am trying to change!

And one way to do that is to point out to people when they make those value judgments! Even in error! Even unintentionally! Because intentional or not, women are still being forced into institutions because of it!

Can I get a little angry about that sometimes?

Don’t you think it points out the root problem fairly effectively to point out that subconscious devaluation rather than just profiling the legislation at issue? Isn’t that also a valid problem to point out?

In general: when I’m short on time and energy, I’m a lot likelier to be short in response, too. I’m a lot likelier to just spit out my point rather than trying to go back, pad things with explanations of why and disclaimers about how I know you aren’t a Bad Person and reaching out my hand to hold yours through the process. Sometimes I feel like doing that. Sometimes that’s a valuable thing to do.

But it’s not always the most effective thing to do. And either way, it’s not what should be required of someone — I am a woman with a disability, remember — before they can point out that someone’s stepped on their toes.

Sometimes I’m mean.

I wish I weren’t mean as often as I am. And sometimes I slip up.

But that doesn’t mean that it’s never acceptable, or effective, to be mean. That sometimes, being mean isn’t what is merited given the situation.

I will continue to engage with this community to the extent and in the manner that I choose. If you don’t like my style, that’s OK. Not every person is required to be compatible with every other person’s style of communication. There are other people doing similar work without my sometimes-rude bent on it. I encourage you to seek them out. You are entitled to engage to the extent and in the manner you choose.

But please do not try to attack the legitimacy of this style altogether. Because it is a valid style, a sometimes effective style, and a needed style. We need all sorts of people to make this movement work. We need all sorts of tactics. We need people who are willing to kick a few people in the ass. And we need people who are willing to hold hands and guide gently. And we need people who can explain the simple facts. And we need people who can pull those facts apart and figure out what they might mean.

We’ve all got different roles. This is mine. If you are not comfortable engaging with this style, OK. Engage elsewhere. But don’t tell me to stop engaging. Because I refuse, absolutely refuse to dial back on calling people out for doing shit that is ultimately harmful.

There are some very important tasks at hand, and I’m willing to do some of the work. The work that I can do. It might not be much work, or the most effective work, but it’s what I can do, and it’s still something to help get these very important things done.

Don’t downplay the importance of that. Don’t even.

by amandaw on Monday, December 21, 2009 at 7:47 pm 10 Comments
Tags : brain fog warning, color me unsurprised, community, control, culture, disability, feminism, i thought you were supposed to be my ally, justice, metablogging, personal, power, privilege-check, problematic attitudes, rants, roles, speak up

I have the right.

I am under no obligation to interact with any given individual. Not under any particular circumstances, not to any particular degree and not in any particular manner.

It will not advance my activism to maintain the public appearance of good relations with a person who causes me nothing but pain, a person who behaves abusively toward me or others, a person who causes harm to myself or others. It does not advance a cause or better the situation of any group of people. All it does is prevent the rest of the community from feeling discomfort at being aware of conflict. But that conflict will exist no matter what: the only difference will be to my personal health. And no, I am not willing to sacrifice my personal health for others’ minor discomfort with being made aware of reality.

I am not obligated to articulate why I am avoiding this persoon or that one. I am not obligated to prove to you that my decision is justified. My reasons are my own, and they are valid. I do not need anyone else’s seal of approval to continue protecting my personal health.

Situations are complicated. And not all of the situation happens in the public eye. And sometimes, I am keeping it that way — keeping things private — for the health of the community. Sometimes, my avoidance of a person is attributable to my own personal background and triggers and issues, things that I have the right to keep to my own damn self. Sometimes, airing a personal conflict can create wider conflict with other people I care about over something that does not actually directly affect them. And I have the right to keep that to myself.

Sometimes, the conflict is a result of something that is relevant to the wider community. Something that is subject to political analysis or something that affects the concerns of the particular community. Sometimes, this conflict arises because I can see another person doing harmful things, behaving in harmful ways, and hurting other community members in the process. And I still have the right to keep that conflict to myself. I have the right to determine for my own damn self whether the actions I am capable of taking would have any positive result — or whether they might have adverse effect on my community, and how much and what kind — or whether they might have adverse effect on me, and how much and what kind — and decide for my own damn self where the balance falls and what to do as a result.

Sometimes, that means speaking up. It means rocking the boat. It means dealing with the unhappiness that results. And sometimes, it means staying silent. Keeping it to myself. And dealing privately with the pain that comes with this or that person’s continued presence and respect within the community.

Sometimes, I am avoiding someone because they whisk me back to painful times, through no fault of their own — simply due to mannerisms or patterns of behaviors which are not inherently negative, but which are just associated for me personally with negative things.

Sometimes, I am avoiding someone because they are downright abusers, even if it is not readily apparent to everyone else in the community. Abusers, you see, don’t always abuse everybody. It is quite common for abusers to be respected and revered within their wider community, considered valuable and indispensible, doing good things for other people — at the same time as they abuse one or more other people, behind closed doors, or in such a way as to slide under the radar of peers and neighbors. And their good deeds do not negate their bad ones. And I have the right to protect myself from further victimization at the hands of my own community as they come to the defense of this person they see as an upstanding and respected member being attacked without provocation (that they were aware of).

I have the right to tend to my own safety, and the safety of others who might be victims of similar abuse, or feeling similar peripheral effects of past abuse.

I have that right. No person can take that from me. Not for any reason.

This applies to people in my workplace. This applies to people in my blogging community (and yes, there are some). This applies to people in my apartment complex. This applies to people in my social circle. It applies any damn place I go. And I have just as much right to go there as the other person does.

If you respect me as a person, you must respect that right. You can keep on liking and interacting with any person you like. But realize that I have the right to abstain from interaction with those same persons. And you don’t get to question why. No matter how much you like them, it does not change the harm that comes when I force myself to pretend that nothing is wrong for the sake of other people’s illusions of harmony.

by amandaw on Sunday, December 13, 2009 at 1:47 pm 9 Comments
Tags : abuse, community, control, culture, feminism, fragments, fuck that, pain, personal, power, rants, shaming, social treatment

A brief PSA on language

So many people have complained that it is asking too much of abled people to stop using words they consider trivial: crazy, insane, lunatic, idiot, moron, dumb, blind, etc.

I beg to differ.

You know what is really damn easy? Erasing these words from your vocabulary. All you have to do is stop saying them.

You know what is really hard?

Confronting people on their use of same language.

We aren’t even asking you to do the hard work. We aren’t asking you to tell other people to stop using that language. We aren’t asking you to confront other people on their use of that language. We aren’t asking you to explain why it is problematic, to answer people’s questions, to deal with their redirection tactics, or to handle the attacks on and harassment of the people negatively affected by that language that such confrontations always seem to draw.

You don’t have to take the brunt of it. You don’t have to deal with the negative consequences. You don’t have to face employment discrimination, street harassment, caretaker abuse, and other people’s general cluelessness about our lives. You get to sit tight in your privilege, enjoying it without even realizing you’re doing it.

All you have to do is cut a few words out of your speaking and/or writing vocabulary. That’s it.

We’re the ones who are putting our safety on the line trying to change the cultural system that oppresses us.

Two seconds to reconsidering what you’re really trying to say? Easy.

Changing other people’s deep-seated attitudes? Really damn hard.

How do you think we feel when you complain that two seconds is just tooooo haaaaard for you to take on?

(Cross-posted at FWD.)

by amandaw on Friday, November 20, 2009 at 9:15 am 3 Comments
Tags : ableism, assholes, culture, essential concepts, feminism, fuck that, i thought you were supposed to be my ally, justice, language, privilege, privilege-check, problematic attitudes, shaming, social treatment, speak up, stereotypes, things people say

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amandaw is a proud woman with a disability who doesn't have nearly enough time to deal with all this shit. Her space is dedicated to the examination of feminism, politics, the social model of disability, and the antics of her beloved cats. Things won't always make the most sense, so hang in there with me—but at least we'll have some pretty pictures to make up for it, ya?

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