I noticed something was wrong in the earliest hours of the morning, when my husband had disappeared from bed but I did not hear anything going on in the bathroom and could not see him anywhere.

Around 8, he got up to go to the bathroom and I lifted myself out of bed to use it after him. When he emerged, he was very clearly not well and said, in a seriously distressed tone, “I just had the most awful night” and stumbled around me back to bed.

It’s not emotional, he clarified as he curled up awkwardly on his side of the mattress, it’s just physical. He had problems feeling seriously sick to his stomach, which never culminated in anything, just churned on and on without relief, and had serious sharp pains in several places — shoulder, lower back, knees — and a generalized all-over ache that left him feeling miserable, unable to find a single comfortable (nay, just non-miserable) position no matter where he stood, sat or lay.

“This is how I imagine you feel every day,” he moaned, as he tossed his body into a different awkward position in an attempt to find some relief.

He needed the still, quiet, restful sleep so badly, but hurt too much to stay lying in place in bed for more than a few moments, and the pain was too distracting to be able to actually fall asleep — and precisely because of this, he was in no condition to be anywhere else but in bed sleeping. A familiar situation for me.

A few minutes later, already in his thirtieth position attempting to achieve some state of rest in bed, he pushed over to where I sat on my side of the bed and asked, “How do you do this every single day?”

Staring at my nightstand drawer, I smiled a bit and replied, “A lot of medicine. And you to help me.”

Monday, January 25, the Pittsburgh Penguins met the New York Rangers at Madison Square Gardens. My boyfriend Marc-Andre Fleury, who sat out several games with a broken finger, was back in net for the first time since the injury. I was all set to marvel at the sexy athleticism on the Penguins’ side when I realized that opposite Fleury, all bedecked in catching gloves and giant leg pads stood… Rangers goalie Henrik Lundqvist.

Well, I’ll get to Lundvqist later. But because today is my twenty-fourth birthday, I thought I would share with you the hotness that is Marc-Andre Fleury!

Beware: extremely image-heavy below the cut.

I am quite fond of the pharmaceuticals I keep organized in my nightstand drawer. But I have to be careful not to drop them, so that the cats don’t find them and try to eat them.

But now, there’s a pill I can drop on the floor and let my kitty chew on all he wants! And if he tires of that, he can roll the bottle cap around the kitchen floor for awhile.

(A screenshot of the Etsy page for a pill-shaped cat toy. Several pictures are shown of a long-haired ginger tabby cat enjoying the catnip-filled, half-red half-blue felt toy, and the plastic orange pharmacy bottle with a prescription label reading “Catatonica.”)

The item description:

These jumbo pills contain a healthy dose of extra strength cat nip – just what the good doctor ordered.

Each pill measures approximately 3″ long and each vial contains two.

So get to the pharmacy STAT! You’ll want to make sure you have plenty of “mothers little helpers” on hand.

DOSAGE:
Take one down, bat it around, kitty is sure to have a ball.

POSSIBLE SIDE EFFECTS:
Temporary ants-in-the-pants followed by extreme drowsiness. Increased appetite not uncommon.

Only $8! I spend way more than that on my human medications. Check out kgrantdesign’s shop for more deliciously cute kitty toys. Next up: fried eggs and bacon.

(Cross-posted at FWD/Forward.)

I have been having a total shit week, very busy with doctor’s appointments and dealing with some extra-special obstructive, discriminatory shit at work, so I haven’t been up for anything that requires engagement. Just mindless reading. But I can always count on the Penguins to cheer me up.

Marc Andre Fleury made the most ridiculous save against the Philadelphia Flyers last night:

This is why he’s my boyfriend. And also why my husband doesn’t mind.

I feel like a five-year-old who just got teleported into Disneyland for the first time. I start bouncing up and down giddily and crying do it again! do it again!!

Philadelphia’s Jeff Carter rushes to the net and makes a shot, which Marc-Andre Fleury thinks he has frozen but ends up coming out for a juicy rebound. Philadelphia’s Daniel Briere works in front of the net trying to chip the puck in, and Fleury falls on his side reaching to stop the puck just outside his crease. Briere makes one last attempt, trying to chip the puck over the body of Fleury, and Fleury, still lying on his side, rolls on his back and curls up just enough to grab the puck out of the air with his glove, legs in the air, rather like a turtle on his back…

Paul Steiggerwald: — good save by Fleury — the rebound, loose around the net, Fleury can’t corrall it — OH! makes a good glove save on a puck that was going over his body and into the net off the stick of Daniel Briere.

Bob Errey: Absolutely sick save by Marc-Andre Fleury, laying on his right side, and Briere thought he had himself when he chipped it, but Fleury somehow got the glove reaching back! …

I’m having a hard time settling in without fazing out and completely losing cognition. What else to do but turn to youtube?

MOON SHOE IT UP!

Second, here’s Billy Mays (RIP) going through the drive-through at McDonalds.

(I’ve heard that (surprise, surprise) the morning radio show people this is associated with are assholes, and I’m sure they are, given that it’s pretty much a requirement in the genre. Fortunately, they don’t appear to have part in this video — it’s all Billy.)

What’s been cheering you up this week?

(Cross-posted at Feministe.)

From the beginning, we knew I was an artist. It has always been a part of my identity, something everyone simply knew.

I never fancied myself a photographer, though, as a child. I colored and painted and sketched; I played with ceramics and sculpting clay, with yarns and plastics and pom-poms. All of that Meant Something; it was not what I did, but Who I Was.

And yet I played with photography continually; my mother would buy a roll of film and I’d have it filled within the hour. I loved to pick up my twenty-dollar Wal Mart 35mm camera, to follow the cats around the house taking pictures. It was so satisfying, the snap and rolling noises, removing the film at the end, excitedly filling out the film envelope at the store and waiting patiently for the week we could afford to get the photos developed — then pawing through the stacks of full envelopes, and breaking the seal, the anticipation of what might lie inside…

And yet I never imagined that I could call myself a photographer. All of this, it was not Who I Was. It was just something I did. It didn’t Mean Something.

I don’t know why.

Late in high school, just as my disability was setting in, I took a strong interest in photography. I had been working with the school newspaper, which was feeding my love of visual design, which had been developing since age twelve when I got a computer and started making my own web pages. I was the tech and copy editor(s), so much of the visual presentation of the paper was in my hands. And I loved it.

Photography was something that caught my eye: the art of photography has a strong basis in design concepts, and yet it resulted in something so much more … classic. Free-standing. Boundless.

I saved money, and did research, and between Christmas, my birthday, and graduation gifts in my senior year, I was able to purchase a “prosumer” level digital camera — not an SLR, but offering many more creative controls than your typical snapshot camera.

March of 2004 is when that small black beauty finally sat in my eager hands. That same month is also when I was just beginning to recover from the most severe and serious flare I had experienced, which had me out of school for several weeks that January, then kept from attending school continuously for some time afterward. I was just getting on my feet again that March, just beginning to catch up with everything I had missed until that point, just beginning to collect all of the make-up work I would have to do to get my report card out of the F graveyard… my very last semester of school.

I took comfort in this new little device. It was something to learn which did not weigh down my consciousness, fog up my comprehension. This was not book learning; it was tactile and visual, and it came naturally, guiding the movement of my fingers and positioning of my body to obtain fresh angles, and even the mathematical balancing, shutter speed and f-stop and film speed, was intuitive.

And it cost nothing, once I had the camera. No rolls of film, no waiting for developing. Just space on my hard drive.

My camera would become my best friend as I looked ahead to college, where I was to face multiple health crises and major life changes. Whenever I was not well, I had something to take comfort in, to help me escape from hostile reality.

There is something about photography that exceeds the intellect. Oh, you use your knowledge and intellectual ability to manipulate all the mechanics and mathematics involved. But it is so much different, so far from the problem sheets of school, occupying a different space in the brain, utlizing different mental muscles. It is grounded in that intellect, but it sprouts forth and grows endlessly, obeying no boundaries, becoming whatever you wish to make it be. No intellectual space can hold the zone I enter when I have that camera in hand.

My disability does affect this art. Most so, my hands are shaky, never steady, always moving, and with occasional spasms. I had so much trouble early on, finding it nearly impossible to take pictures requiring a low shutter speed (below 1/30). I couldn’t afford the beautiful machines that handled higher ISOs gracefully, which would have allowed me to play more within this low shutter speed situation. But they were beyond my reach — still are, really.

It has taken me years to learn how to compensate for this. Years and years of failed attempts, frustration, disappointment, self-criticism. And it has come only little by little. And it is not complete.

But there is a physical knowledge there, and my muscles are being trained to hold steady in certain places, certain ways. I have learned to brace against a wall, chair, pole or rail, or even my own body. I have learned tricks: to extend the LCD screen out to the side, so that I can hold the camera at both ends, keeping it safer from unintended movement.

I cannot steady my entire body. It is simply not a trick available to me. But I am learning where to focus my energies, which muscles to use which ways.

And my photos are turning out much crisper, clearer.

This comforts me. When my art is crisp, clean, readable, I feel the same inside. When it is foggy, unfocused, poor quality, I feel the same inside. I feel frustrated at my inability to communicate what is going on inside this complex body to the outside world.

Learning how to do that more effectively… that is a life-long lesson.

Watch the video:

Listen without interruption. (Embedding disabled, you have to click through.)

There are so many times, so many situations, where this song is just the right medicine. Listen. And then watch the video. It provides the right context (despite the annoying interruptions), but most of all the video is simply captivating.

Every time this song comes up on my playlist, my mind just stops and I escape into that video for two minutes.

And then I go back and play it again.

“I’m Not Like Everybody Else” (The Kinks)

I won’t take all that they hand me down,
and make out a smile, though I wear a frown,
and I won’t take it all lying down,
’cause once I get started I go to town.

’cause I’m not like everybody else,
I’m not like everybody else,
I’m not like everybody else,
I’m not like everybody else.

And I don’t want to ball about like everybody else,
and I don’t want to live my life like everybody else,
and I won’t say that I feel fine like everybody else,
’cause Im not like everybody else,
I’m not like everybody else.

But darling, you know that I love you true,
do anything that you want me to,
confess all my sins like you want me to,
there’s one thing that I will say to you,
I’m not like everybody else,
I’m not like everybody else.

I’m not like everybody else,
I’m not like everybody else
and I don’t want to ball about like everybody else,
and I don’t want to live my life like everybody else,
and I won’t say that I feel fine like everybody else,
’cause I’m not like everybody else,
I’m not like everybody else.

Like everybody else,
Like everybody else,
Like everybody else,
Like everybody else.

If you all want me to settle down,
slow up and stop all my running round,
do everything like you want me to,
there’s one thing that I will say to you,
I’m not like everybody else,
I’m not like everybody else.

I’m not like everybody else,
I’m not like everybody else.
and I don’t want to ball about like everybody else,
and I don’t want to live my life like everybody else,
and I won’t say that I feel fine like everybody else,
’cause I’m not like everybody else,
I’m not like everybody else.

Like everybody else (like everybody else),
Like everybody else (like everybody else),
Like everybody else (like everybody else),
Like everybody else.