three rivers fog

Do you REALLY trust women?

For the purposes of this post, I would like to remind everyone that the range of disability includes people who are mentally ill, paralyzed, Blind, Deaf, permanently injured, autistic, physically disfigured, with compromised immune systems or disordered speech or chronic pain or cognitive impairments, and many, many others. Disabilities may be fatal or not, may be degenerative or not, may be apparent or not. Being painful, fatal, stigmatized, or poorly understood does not mean that life is not worth living, and I will not tolerate any attempts to enforce a hierarchy of disability; there is no category of Especially Bad Disability that destroys any chance of worthy life.

A blue-purple sunburst in the background, white letters reading "TRUST WOMEN: Blog for Choice Day 2010"

Blog for Choice Day 2010

Have you ever participated in the stigmatizing of pregnncy, childbirth and childrearing when the parent, child, or both have, or could have or obtain, disabilities?

Have you ever participated in the cultural narratives that say:

  • Older women should not have children because their children are more likely to have a disability
  • Women with disabilities should avoid having children because their children might also have a disability, and it would be wrong, unjust and cruel to give birth to a child that is not in perfect health
  • Women with disabilities should avoid having children because only temporarily-abled women can properly parent a child, or being a mother with a disability would somehow deprive the child of necessary experiences or put a burden on the child
  • Women with disabilities should avoid having children because they are more likely to be poor and need public assistance, and their children would also be more likely to use public assistance in the future, resulting in a drain on temporarily-abled taxpayers
  • Women with disabilities would be selfish to have children, and to do so would contribute to environmental destruction, economic decline, and even degradation of the human species, and they and their children would be less valuable members of society because of their lack of perfect health
  • It would be a tragedy to have a disabled child, disabled children are less desirable than temporarily-abled children
  • Life with a disability is inherently worse than life without one; life without a disability is the baseline by which all life should be measured, so of course to have a disability would be a negative and would make a person’s life worse
  • Disabled children are a burden on their temporarily abled parents, more so than any other child would be, and this is because of the child’s disability rather than because of the lack of support and affirmation throughout all levels of society for PWD and their loved ones
  • Of course it is more desirable for a child to be perfectly healthy than to have some sort of medical imperfection, and those medical imperfections are a big stress and hassle on the temporarily abled people around the child, and there is something wrong with the child for failing to meet an impossible standard of perfection
  • Health and ability are objective concepts and our current cultural wisdom on them are completely right and the medical industry that puts them forth is infallible; our ideas about health and ability are the only right way to look at things and can be universally applied
  • To violate those cultural ideas means that you are inherently flawed
  • The answer to all of this is to go to excessive lengths to avoid ever having, or being around someone who has, health problems, up to and including letting the least healthy die off or be terminated before they can live at all

You know what? I’ll bet you’ve all done it. Even the most radical disability activist has participated in some of these cultural tropes at some point in their lives.

But I’ll bet the vast majority of people “blogging for choice” would never think of disability as related to “choice” issues, and if they did, it would be for the right of temporarily-abled higher-class white Western women to terminate a pregnancy that has a more-than-minute chance of resulting in a less-than-perfectly-healthy child.

This is why the “choice” framework fails. It fails all of us, but it particularly fails those of us who fail to meet society’s idea of the optimal person: the pale, thin, beautiful, and financially comfortable picture of perfect health. The person who never relies on others (no!), is “self-sufficient,” and isn’t likely to end up a burden on the important people.

The rest of us can “choose” to stop existing.

Do you really trust women? Or are you perfectly willing to override their choices if you feel they threaten your comfortable position in society?

And you expect me to think you’re any better for my rights and needs than pro-lifers, why?

(Cross-posted at FWD/Forward.)

by amandaw on Friday, January 22, 2010 at 7:43 pm 3 Comments
Tags : ableism, choice feminism, class, cultural lens, culture, disability, feminism, health policing, justice, language, mental illness, neurodiversity, normal is only one option, politics, pop culture, pregnancy, privilege, privilege-check, problematic attitudes, reproductive, self-determination, shaming, social justice, social treatment, speak up, the left, the right

A brief PSA on language

So many people have complained that it is asking too much of abled people to stop using words they consider trivial: crazy, insane, lunatic, idiot, moron, dumb, blind, etc.

I beg to differ.

You know what is really damn easy? Erasing these words from your vocabulary. All you have to do is stop saying them.

You know what is really hard?

Confronting people on their use of same language.

We aren’t even asking you to do the hard work. We aren’t asking you to tell other people to stop using that language. We aren’t asking you to confront other people on their use of that language. We aren’t asking you to explain why it is problematic, to answer people’s questions, to deal with their redirection tactics, or to handle the attacks on and harassment of the people negatively affected by that language that such confrontations always seem to draw.

You don’t have to take the brunt of it. You don’t have to deal with the negative consequences. You don’t have to face employment discrimination, street harassment, caretaker abuse, and other people’s general cluelessness about our lives. You get to sit tight in your privilege, enjoying it without even realizing you’re doing it.

All you have to do is cut a few words out of your speaking and/or writing vocabulary. That’s it.

We’re the ones who are putting our safety on the line trying to change the cultural system that oppresses us.

Two seconds to reconsidering what you’re really trying to say? Easy.

Changing other people’s deep-seated attitudes? Really damn hard.

How do you think we feel when you complain that two seconds is just tooooo haaaaard for you to take on?

(Cross-posted at FWD.)

by amandaw on Friday, November 20, 2009 at 9:15 am 3 Comments
Tags : ableism, assholes, culture, essential concepts, feminism, fuck that, i thought you were supposed to be my ally, justice, language, privilege, privilege-check, problematic attitudes, shaming, social treatment, speak up, stereotypes, things people say

Open letter to Feministing

Oct 28, 2009 NOTE FOR NEW VISITORS: Please visit this post first (it’s short). Thanks.

***

[The amazing abbyjean sent me annotations. Annotations! So now: Open Letter To Feministing With Links. We proceed.]

This includes the contributors and the commentariat.

We have a problem. We have had a problem for a long, long time.

You traffick in ableism. Your entire site reeks of it. I have spoken with many disabled feminists who find it impossible to read and participate in your community. They feel excluded. The culture is thick with unexamined ableism. We encounter common slurs and problematic cultural concepts at every turn, and are met with hostility when we bring it up. Some people have wasted energy on emailing you, requesting that you address it, so that they might safely participate in the community. You never bothered to respond. To any of them.

You’ve lost a lot of readers this way. But I’m sure, because that’s the way it usually goes, you lose less readers due to ableism than you gain due to same — because you never challenge their privilege, in fact defend it, passively and actively.

That’s nice for you and all, but the rest of us would, at best, like to play too. As for the worst — we would deeply appreciate it if you would stop deliberately (and don’t you dare say otherwise, you have heard our complaints and ignored them, making your actions deliberate) reinforcing a culture which marginalizes us, leaves us vulnerable to violence (including sexual violence), ostracization, institutionalization and death.1

I viewed enough of this happening at your site — (years ago, when I was just getting into the feminist blogosphere; disappointingly, you haven’t changed a single bit in the intervening years) — that I never even bothered trying with your site. I’d love to have been able to. But your site has never felt like a safe space for me. Ever. Exactly the opposite. Your site has felt like a hostile and scary place to myself and other women.

W-O-M-E-N.

You can read, right? Spell it with me.

You cannot claim to care about my condition as a woman if you refuse to address the discrimination I face as a disabled woman.

As far as “what issues affect women”: I am a woman. Presumably, feminists care about the oppression women face.

But you cannot address the oppression I, a woman, face, without addressing the oppression so graciously given me on the basis of my disability.

For example, I face discrimination in the workplace. But if we are only to address the male-female pay gap, and ignore the obstacles I face because I am disabled, then you are not helping me as a woman. I am still left behind, still oppressed, as a woman. All you have done is alleviated the issues which affect you. Which means you aren’t helping women; you are helping healthy, abled women exclusively.

This is the basic framework I work from in my feminism. I am not helping women if I am not also out there addressing classism, transphobia, racism, homophobia, and all of the other oppressions that women face.

The reason “Sean Bell is a feminist issue” is because you must address the oppression which killed him to be able to address the oppression of women. If you cannot address that oppression — even though it affected a man this time — you cannot help the women who are also facing that oppression.

And if feminists are ok with not helping women on that level, then feminism isn’t about helping women, it is about helping white women. (me@tumblr)

And I am sick and fucking tired of having to explain this to the likes of all of you. If you are not there to help me in the problems I face because of my disability, you are not helping me as a woman. I am a whole person, not fragmented little bits. You have to help all of me to help any of me.

And if you aren’t all-in, for helping ALL of me, you are therefore declaring that you are only interested in helping ABLED WOMEN. You can cut out this bullshit about being “feminist,” as though you are working on behalf of “women.” Because you aren’t, at that point, working on the basis of gender: you are working on the basis of women with a certain ability status. Period.

A few days ago, meloukhia at this ain’t livin’ heard us complaining, and got sick of it herself. So she posted her Open Letter to Feministing and began promoting it. And it got some attention.

Apparently, Courtney has emailed her back, as of this writing. They are “in the generalities stage.”

I have absolutely zero interest in personally emailing with any of you, but I want to make sure people know that we — disabled feminists — aren’t stupid enough to be placated with a generic private apology. And I want you to know this. What it is that I, one particular disabled feminist, want from you.

1. Just posting about ableism-in-general, while a huge step for you (considering you never engage with disability in even a token capacity), IS NOT ENOUGH.2

2. Feminists have a long history of only ever speaking the dreaded d-word when it comes to reproductive rights, particularly (almost exclusively) the right to an abortion. Yeah, I know, you thought this would be easy. THAT WILL NOT BE ENOUGH.

3. As far as I’m concerned, you are dead to the cause if you never put up a post addressing your own ableism. Not ableism-in-general. THOSE POSTS ARE STILL NECESSARY. BUT THEY ARE NOT ENOUGH TO ANSWER OUR CRIES. You must put up a post examining your own personal ableism, and particularly the ableism you deliberately condone in your comments section.

In your comments section, a few disgusting, prejudiced, DANGEROUS memes are repeated with not an ounce of pushback:

* that health can be obtained by Doing The Right Things (eating right, exercising, being upper-class privileged enough to live the perfect little high-class life that is correlated with that definition of “health”) and that if you don’t Do The Right Things, any conditions that come up are Your Own Damn Fault, Don’t Come Crying To Us For Help

* attitudes expressed that fat people, smokers, and sick people should be paying more for healthcare because their illness is dragging the abled world down

* that disability is an awful tragedy and disabled people deserve only your pity, never your respect, and who knows why disabled people are segregated away in decrepit institutions, it couldn’t be connected to the way we regard disability as the end of meaningful life as we know it, nuh uh

* that having a disabled child would be such an abomination they must be screened out at all costs, and there is nothing at all problematic with this oh no oh no (DISCLAIMER, FOR GOD’S SAKE, I DO NOT PROPOSE LIMITING WOMEN’S REPRODUCTIVE FREEDOM, BUT I DO THINK YOUR PRIVILEGED ASSES NEED TO CONSIDER YOUR COMPLICITY IN OTHER PEOPLE’S SUFFERING) 3

* that Disability Is Objectively Bad, everyone knows that, duh, who would ever want a disability, of course life is going to be worse with one, and that is just because disability is (of course) inherently awful, and could never (of course) be because we make it worse by the way we treat disability[4.
* Even more frightening, the number of women who are on antidepressants ... why the hell are they having children anyway ... fuck if you can't cope with life, how the hell does one expect to raise a child! http://www.feministing.com/archives/005359.html#comment-47387

* I do think that for the sake of society, people who's severe disability roots from their genes should be prevented from reproduction. I'm not sure what that means, and I know the slippery slope that kind of thought can lead to, but I think somehow it's the most utilitarian thing to do. Not to put a blow against the I Am Sam or anything, but I think some people really don't have the capacity to raise their kids (certainly there are plenty of non-disabled parents who fit this description), but my main concern is that the children are more likely to have those same disabilities. I think society's attitude should be to respect and accept the disabled but not to encourage its increase. Certainly we don't want to always be making decisions for people who can't make them for themselves, right? http://www.feministing.com/archives/007889.html#comment-107733]

* words like “lame” and “retard” and “cripple” and “crazy” are totally ok to use — and their conceptual meanings as well — because disability is objectively bad so it makes sense to use something objectively bad to say that something else is bad, or because no one ever uses that word that way anymore (that I hear, because I as an abled person am the ultimate arbiter of how often certain things are said to certain people, the vast majority of whom I never encounter because they are segregated away from me) and it has lost its derogatory connotation, or that I have a cousin who’s retarded and I love him to death so that means I’m allowed to use the word because that totally eliminates my abled privilege, or it’s just too much of an imposition to change my language and have to lose that one concept to express that is based on harmful prejudice, or or…[5.
LAME

* God. Jennifer's body looks soooo lame. The stupidity dripping from the trailers is so overwhelming, I can't even imagine too many dumb and sexist stereotypical males going to see it. http://www.feministing.com/archives/017815.html#comment-298306

* lame. So fucking lame. http://www.feministing.com/archives/011318.html#comment-182734

* Samhita, 11/07: “Forget immigration, reproductive rights, health care or any other issue we feminists are reading up on for the upcoming election. It is all about getting a hot chick in the white house as first lady. Does that not count potential first dude, Bill? Forget you men.style.com, you are totally lame.

In that thread, someone raises the problem, and another commenter dismisses: “It's been so long since "lame" was used for people with disabilties that I really don't think it's an issue anymore. Besids, it's used as a synonym for "loser", not "defective" (which also isn't a synonym for people with disabilities anymore).” http://www.feministing.com/archives/008086.html#comment-114144

* 1/07, Courtney headlines an article “Can I Get a L-A-M-E”. again, someone calls it out in comments but no response from mods, although mods respond to other posts. http://www.feministing.com/archives/006368.html

* “LAME. Excuse me while I barf in the corner.” http://www.feministing.com/archives/015410.html

someone calls it out in comments and response: “Please don't spread prescriptivist poppycock on any site.” http://www.feministing.com/archives/015410.html#comment-257102

* “Lame-ass beer ads are a dime a dozen.” http://www.feministing.com/archives/017741.html

RETARDED

* Victoria Beckham is so retarded, I think she almost belongs in that shopping bag. http://www.feministing.com/archives/008985.html#comment-144542

* Commenter asks “Am I retarded, or can't you reverse a tubal ligation?”http://www.feministing.com/archives/007454.html#comment-93573

response is “No, you're not retarded. There are two types of ligations…” later in thread, commenter raises, no mod response though mods active in thread.

* One commenter uses the term: “It's like when you try to control a teenager and shelter them from reality - when they go into the real world, they often rebel and make a lot of retarded decisions.” http://www.feministing.com/archives/014575.html#comment-239116,
only response is another commenter pre-ridiculing any response: “Uh-oh, you said "retarded!" Get ready to duck the flying tomatoes! :P” http://www.feministing.com/archives/014575.html#comment-239125

* “Lindsay Lohan doesn't have curves like Marilyn Monroe did so to even do this shoot was a retarded idea in the first place.” http://www.feministing.com/archives/008637.html

* “So still being able to marry but being offended by something has the same impact as two gay people not being able to marry? What are they, retarded?” http://www.feministing.com/archives/011095.html#comment-179668

CRIPPLE

* “but the idea of marriage cripples my aspirations in life.”  http://community.feministing.com/2009/07/what-to-do-when-you-want-to-ma.html#comment-282211

* “When you use satire against powerless people, as Limbaugh does, it is not only cruel, it’s profoundly vulgar. It is like kicking a cripple.” http://www.feministing.com/archives/006861.html#comment-73327

* Canadian reactions are a little different from American ones, very negative or hostile actions can really ruin you (Do not make fun of a cripple, or call someone a Kitten Eater, for instance). http://community.feministing.com/2009/04/women-prefer-polite-politician.html#comment-244108

* “I'm not sure this guy built a robot just to sexually abuse. I think he's an emotionally crippled individual who can't relate to the opposite sex.” http://www.feministing.com/archives/012670.html

CRAZY

* Jessica titles post “Fun with feminist flickr (crazy billboard edition)” http://www.feministing.com/archives/006229.html

* Vanessa titles post “Randall Terry’s Crazy Road Show” http://www.feministing.com/archives/017413.html

* Vanessa titles post “Sen. Tom Coburn's chief of staff reaches new level of crazy” http://www.feministing.com/archives/017876.html

* Jessica titles post “What Double Standards Drive you Crazy?” http://www.feministing.com/archives/007551.html

* “I would be all for the feminists for life if they weren't so schizophrenic about their positions. They won't take a position on birth control but they don't want women to have abortions.” http://www.feministing.com/archives/002804.html#comment-13883

(amandaw's note: good Lord, I can only imagine what you'd find if you searched for "insane" "loony/loonytunes/etc." "unhinged" "psycho" and so forth - again, it's not just the word that's the problem)]

* that if one person, especially a person who has a disability, says something isn’t hurtful or problematic, you can call the whole thing off, because all those other people who DO have a problem with it and have suffered the consequences of it just cease to exist, poof!

* the sense of supremacy over others because you are (choose any or none, thin, abled, upper class, pretty, educated) and fully abled, which makes you totes better than everyone else, but you never CONSCIOUSLY think that so it’s totally ok that you still avoid Those People whenever possible because they scare you or squick you out, almost like they make you uncomfortable realizing your position in life is never as certain as you like to pretend it is? — nah, couldn’t be, just because they’re weird and gross and like, different and stuff

That’s just to start.

This is all shit that goes down in your comments regularly. And it makes women (spell it with me, W-O-M-E-N) feel uncomfortable and unwelcome, especially when they speak up and have other people jump back defending the exclusionary language and concepts, stating that they don’t have a problem with it and therefore there is no problem with it, saying or implying that the challenger must be oversensitive, have an agenda, looking for things to get angry about, or just doesn’t understand that the person committing the exclusionary behavior is a Good Person and that should be good enough.

Well. It’s not good enough. You are not good enough. Your whole site is not good enough. It is going to take some major changes. You are going to have to put yourself on the line, do some serious reading, reflecting, digesting, and actually change how you think and act (and not just by saying “I believe it now!” — we aren’t stupid, we can tell when there has been a true change). You are going to have to criticize yourself and your fellow writers. And –  this is the fun part –

4. you are going to have to change your comment section. You will moderate and fight back against ableism (which you will recognize, because you have actually been making an effort to learn more than you do now, right?) from your own commenters. You will delete offensive comments and tell commenters to stay the fuck in line. And not just once. Every time. EVERY FUCKING TIME.

And don’t you dare cry that it takes up so much time. Because you’re already spending that time watching your space to protect the abled women in it.

We would love it if you would give us the same fucking courtesy.

See also: meloukhia: Open Letter to Feministing; Anna: Dear Feministing: Answer your email; Annaham: Confessions of a Reluctant Young White Feminist; Anna again: Anti-Oppression Linkspam; Chally: Feminism that doesn’t advance women is no feminism at all.

All annotations abbyjean’s except where noted in parenthesis.


Women with physical disabilities also were more likely to be abused by their attendants and by health care providers. Thirteen percent of women with physical disabilities described experiencing physical or sexual abuse in the past year. Women with physical disabilities appear to be at risk for emotional, physical, and sexual abuse to the same extent as women without physical disabilities.

Prevalence of abuse by husbands or live-in partners in this study is similar to estimates of lifetime occurrence of domestic violence for women living in the United States. They are also more likely to experience a longer duration of abuse than women without physical disabilities. (Prevalence of Abuse of Women with Physical Disabilities Young ME, Nosek MA, Howland CA , Chanpong G, Rintala, DH. Prevalence of abuse of women with physical disabilities. Archives of Physical Medicine and Rehabilitation 1997; 78 (Suppl):S34-S38. , http://www.bcm.edu/crowd/abuse_women/1PREVLNC.htm)

* The disability type most likely to receive services from an abuse program was mental illness, whereas programs were the least likely to serve those with visual or hearing impairments. On average, 10% of the women served by each program had physical impairments, 7% had mental retardation or developmental disabilities, 21% had mental illness, 2% had visual impairment, and 3% had hearing impairment. For nearly half of the programs, less than 1% of their clients served within the past year had physical impairments.

* Abuse programs on average provided two services targeted to women with disabilities; 89% of abuse programs provided less than five special services for women with disabilities.

* The most commonly provided service available to women with disabilities was accessible shelter or referral to accessible safe house or hotel room (83%). A majority of abuse programs provided individual counseling (80%), and group counseling (73%). Nearly half (47%) provided an interpreter for hearing impaired women. Less than half (40%) presented workshops or other training on recognizing potentially violent situations. Approximately one-third offered safety plan information modified for use by women with disabilities (36%), and disability awareness training for program staff (35%).

* The service least likely to be offered was personal care attendant services, available in only 6% of abuse programs.

* Sixteen percent of programs have a program staff member who is specifically assigned to provide services to women with disabilities.

(Stats from Center for Research on Women with Disabilities, from comprehensive survey of national shelters for domestic violence victims. http://www.bcm.edu/crowd/abuse_women/progfact1.htm)

Women with disabilities are significantly more likely to experience abuse than non-disabled women. It is estimated that women with disabilities are 1.5 to 10 times more likely to experience violence than non-disabled women, depending on whether they are living in the community or an institution (Public Health Agency of Canada, online).

(From: We Are Visible: Ten Years Later WARNING: PDF)

People with disabilities are one-and-a-half times more likely to be the victims of violent crime than are people without disabilities, says the first national study to compare crime rates.

(NPR health blog)

(amandaw: and see Cara’s post at Feministe for a demonstration about how you can actually try to engage with disability issues! and lightning doesn’t strike you dead on the spot!) ↩


From a 2005 post by Jessica: “The United Nations is in the process of drafting a treaty on the rights of the disabled, and subsequently debating whether or not to include a ban on the abortion of fetuses with disabilities.Is this a disability rights issue or a women’s rights issue?” (no overlap possible!!) http://www.feministing.com/archives/002663.html ↩

* “Genetically speaking, no woman over the age of 35 should be having children. Birth defects increase as the age of the woman increases. This is not discrimination, it is reality. The idea that this is a “choice” and therefore a good one is ridiculous. Just because it is “medically possible” does not mean it’s a good idea.” http://www.feministing.com/archives/015536.html#comment-258385

* No birth defects are awesome, best thing ever. That’s why they’re called “birth defects” to trick suckers in to not trying to make sure they have them; sort of like the “Greenland/Iceland” naming fable. I’m spearheading an effort to re-allow the use of thalidomide and also opening an exclusive cat-feces handling clinic for expectant mothers who know better than to think there is anything wrong with birth defects. http://www.feministing.com/archives/015536.html#comment-258896

* What would would worry me is having a child whose developmental age never progresses beyond a baby or a toddler. I have seen parents struggling to cope as their tall 20 year old son has a toddlers temper tantrum, or struggling to physically care for an adult who still needs the physical and emotional care given to a baby. The strain on the whole family of coping with adults with these types of disabilities is enormous. http://www.feministing.com/archives/015536.html#comment-259084 ↩


by amandaw on Monday, October 5, 2009 at 4:09 pm 40 Comments
Tags : brain fog warning, chronic illness, class, color me unsurprised, culture, disability, fat, feminism, fuck that, health policing, i thought you were supposed to be my ally, justice, language, normal is only one option, power, privilege, privilege-check, problematic attitudes, rants, speak up, stupid blog wars

thoughts on determining who is a “Real” Member

of any group. in this case, Christianity, as written by Melissa here:


Christianity has a 2,000-year history that has seen countless iterations of the religion based on countless interpretation of the text and shaped to fit countless times and spaces and needs in disparate cultures all around the world. Christians have done great things, and not-so-great things—and anyone who makes the personal choice to carry the Christian mantle associates themselves with a history that includes all the good stuff and all the shitty stuff, too. One can’t say, “I only associate with the good Christianity—not the inquisitions and the genocides and the warmongering and the colonialism and the institutional misogyny, homophobia, transphobia, racism, anti-Semitism…”

That’s all part of Christianity’s legacy, too—and it just isn’t intellectually honest to say, “Well, those weren’t real Christians.” Yes, they were. And so are the Christians who do shitty stuff today.

They might not be the same kind of Christian as you are, but they are nonetheless Christians.

Christianity, at least (and especially) in America, is a privilege—and, like any privilege, it can be uncomfortable to face the ugly reality of what other members of a privileged class can do to non-privileged folks, even if you don’t do it yourself. I’m white, I’m straight, I’m cisgender: I understand the impulse to distance oneself. But as a white person, I am obliged to acknowledge that the history of white supremacy in America is one of slavery, of lynchings, of segregation, of sundown towns, of internment camps, of genocide, and of all manner of institutionalized racism. I don’t get to say (nor do I want to) that the KKK aren’t “real” white people.

They sure as hell are.

I do my best not to play that game.

The problem is that such a distinction, the Bible makes very clear, is none of our business. It is, in fact, something Jesus explicitly commanded his followers not to do:

Jesus told them another parable: “The kingdom of heaven is like a man who sowed good seed in his field. But while everyone was sleeping, his enemy came and sowed weeds among the wheat, and went away. When the wheat sprouted and formed heads, then the weeds also appeared.

“The owner’s servants came to him and said, ‘Sir, didn’t you sow good seed in your field? Where then did the weeds come from?’

“‘An enemy did this,’ he replied.

“The servants asked him, ‘Do you want us to go and pull them up?’

“‘No,’ he answered, ‘because while you are pulling the weeds, you may root up the wheat with them. Let both grow together until the harvest. At that time I will tell the harvesters: First collect the weeds and tie them in bundles to be burned; then gather the wheat and bring it into my barn.’”

This also informs my feminism, for what it’s worth. I don’t get to decide what’s Truly Feminist. I do get to decide what kind of feminism to align myself with, though.

But these arguments over Who Is A Real True Member Of My Group never feel quite right. Much like Melissa said, it feels like trying to hold up the Good parts of your faith/belief/politics and disown the bad. But we don’t get to do that.

Some seriously horrific shit gets done in my name, as a Christian, a white person, a feminist, a US citizen. I don’t get to disown that for my own ego. To do so is to deny the real hurt and pain that the victims feel — to tell them “your pain matters less than my reputation.”

I am a Christian. It’s what I believe. And it’s also tied to a long and painful history of cruelty and oppression. I will not abandon my personal faith because other people who shared it were assholes. I will also not attempt to say that those assholes somehow don’t count as Real True Christians because of their actions. Because I’m not the one who gets to decide that.

I am a feminist. It is what I am. And it’s tied to a long and painful history of cruelty and oppression. It is happening now. I don’t get to deny that. What good does it do the victims to say “Well, you were victimized by fake feminists, not real ones”? What do they care, and why should they? They were victimized nonetheless, and that should be enough. That should be enough for us to take them seriously and right the wrongs that were done in part by us. Those people were, and are, still feminists. What I should be doing is not writing them out of my history, but accepting that history and attempting to make feminism better right now.

In short, the game feels dirty. Because it’s not about actually doing right by other people, in the end. It’s about our own self-esteem. And yeah, my self-esteem is important. But that’s for me to mess with – I don’t get to use other people’s pain as a tool for my personal betterment.

by amandaw on Tuesday, September 29, 2009 at 1:28 pm 1 Comment
Tags : brain fog warning, community, culture, feminism, identity, justice, language, politics, privilege, privilege-check, problematic attitudes, religion

On mental illness

Written originally for my stint at Feministe at the beginning of July; been working on it bit by bit ever since, but suddenly it has become topical again.


Part I: The Personal

Note: I’m going somewhere with this. Please keep your mind open as you read, because I will be coming back in Part II with a concept that may seem to conflict with your initial reading of Part I. Thanks.

Understanding my background is essential to understanding my understanding of these things. And so we go.

My brothers and sister, between them, share two diagnoses of bipolar disorder, one of schizophrenia, two of those with psychosis, and all three have severe depression and/or generalized anxiety disorder. That is only what has been diagnosed by mental health professionals — D* was only diagnosed by way of being taken to prison and has not seen a doctor otherwise in decades.

My mother never saw a mental health professional and never will, but she shares most of the symptoms my siblings display, and my own mental health professionals have agreed with me that if there is a diagnosis to give her (with all requisite caveats), it would be borderline personality disorder.


1.

My brother D* had the worst situation of the family. He was the first to go to jail: when he was taken to court for some sort of licensing issue, he refused to give his name. Wouldn’t speak. And so they put him in jail. And he stayed there for eight months before relenting so that he could just go home.

How long would you stay in jail for a principle?

MORE

by amandaw on at 4:47 pm 17 Comments
Tags : class, community, control, culture, disability, diversity, family, health policing, healthcare, home, identity, justice, language, mental illness, neurodiversity, normal is only one option, personal, privilege, problematic attitudes, self-determination, stories, treatment, welcome to my life

Disability Is…?

Apologies for RSS readers; I forgot to cross-post this when posted at Feministe! Getting it posted so I can move on to new posts.

***

We had a really good discussion about nondisability. It got derailed, a bit, because it depended on our ability to reasonably define disability. And it’s a subject that has come up in every discussion we’ve had these couple weeks. What is it?

I advocate an intentionally overbroad definition of disability. And I definitely see a tendency, with certain medical conditions, not to identify — on that inner level, what “feels right” — as disabled.

I support every person’s right to self-determination, to define their own experiences, and to identify however feels most right for them. I do not want to try to pressure people into identifying in a way they do not feel comfortable. But I do think that part of this tendency, this reticence, is rooted in a sort of ableism. Not ableism as in “internalized negative feelings about PWD” — but ableism as in “a certain understanding of how the world works and how society is/should be structured” … or, you might say, a certain model.

I want to explore a few things — explore our assumptions behind the word “disabled.”

MORE

by amandaw on at 9:56 am 2 Comments
Tags : accessibility, body image, chronic illness, culture, defaulting, disability, diversity, feminism, identity, justice, language, mental illness

Perfect

I, and others, have been mulling over how to refer to people who are not disabled. Roughly, our options seem to be:

* normal, or non-marked identity: centering a certain body/mind as “normal” necessarily implies that any difference makes a person less than. It tends to imply that “normal” is accepted as good, whole, while non-normal is bad, wrong, diminishing.

* able-bodied, which seems to be the settled-upon term: excludes people with non-physical disabilities — and I have had so many people write me expressing that they feel their non-physical conditions didn’t “count” as disability, and it just makes my heart cry.

* temporarily-able-bodied: I love this term, because it makes clear: at any time in life, you may become disabled, due to age, injury, late-manifesting genetics, or social barriers. Your privilege will not always be with you, so pay attention, because you might find yourself on the other side of the fence at any point. But this still centers physical disability and excludes non-physical disability.

* neurotypical, physiotypyical: NT is a term used in the autistic community to describe persons whose neurological makeup conforms to the expected norm, but it doesn’t describe conditions which are not neurological in nature. Physiotypical might cover those conditions, but it requires using both terms, and still may not be truly comprehensive. I can’t come up with any good, comprehensive word to describe the range of disability (mental, physical, neither/both) to use as a prefix in place of “neuro-” and “physio-”.

* normative: I like this term because it emphasizes the social conformity rather than some inherent difference; think heteronormative. I just can’t find a good word to combine it with to describe the category of ability rather than heterosexuality.

* non-disabled: functional, but we tend to want a specific term to describe the privileged category — which is why trans community members came up with “cis” to describe people whose gender identity is consistent with their assigned gender.

* abled, fully-able: I have been leaning on these terms as the most neutral of the set of options, but they still just don’t seem to describe what we’re trying to describe — and referring to an able-privileged person as “fully able” may be inaccurate; ability is not a binary.

I think, though, I’ve finally settled on the term I’m comfortable with: Temporarily Non-Disabled.

This harnesses the power of temporarily able-bodied but without excluding non-physical disabilities. And it is a longer term but easily condensed to TND. We’ve got enough acronyms going, so why not? And I’m actually rather excited — this is a language quirk that has bothered me for some time, so having a term that seems to fit right is a considerable comfort to me.

Thoughts? People with disabilities — of any sort — please feel free to comment. Does TND seem like the best choice to you? Do you see any problems with it? Do you prefer something else? What makes the most sense to you?

ETA: Anna points out in comments that this is somewhat US-centric: UK disability advocates tend to use “disabled person” and “non-disabled person” as opposed to “person with a disability” or “person without a disability” (people-first language). And other countries may have different approaches as well. Something to keep in mind.

ETA 2: Many people in comments bring up the word “currently” in place of “temporary” and most people seem much more comfortable with this terminology. Currently Non-Disabled/Currently Able? It fits just as well for me – read through the comments to see what other people are saying. It’s a great thread so far.

(Cross-posted at Feministe.)

by amandaw on Tuesday, July 7, 2009 at 8:45 pm 2 Comments
Tags : defaulting, disability, identity, language, privilege

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amandaw is a proud woman with a disability who doesn't have nearly enough time to deal with all this shit. Her space is dedicated to the examination of feminism, politics, the social model of disability, and the antics of her beloved cats. Things won't always make the most sense, so hang in there with me—but at least we'll have some pretty pictures to make up for it, ya?

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